nickieg's Journey with Adenocarcinoma, Colorectal Cancer

Patient: Colorectal (Colon) Cancer > Adenocarcinoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 6 years ago, Female, Age: 67, KRAS mutation positive: Don't Know, BRAF mutation positive: Don't Know, Stage IIIC

  1. 1
    • nickieg
    • Experience with Adenocarcinoma, Colore...
    over 4 years ago
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    Colon surgery (colectomy or hemicolectomy)

    Procedure or Surgery

    I not only had surgery to remove the tumor in my colon but it was also necessary to remove 5' of my colon. I also did have a long term port before the surgery date. I also had to have something called the "tulip valve" removed becasue it too was cancerous. I was in Memorial Sloan-Kettering for 7 days and it was not easy. It was a lot harder than I expected and my recovery was hard too. I was in pain and nauseous alternately. I also went through 6 different scrips to find the right one to address the nausea from the chemo treatment. But, I did it all, and only had 2 little pity parties. I did have to quit work but I was already close to reitrement. I kept going and doing almost everything i wanted to do. I needed to rest a lot when I first came home from the hospital and I had to wait 2 months before starting chemo because my incision was not healing well. But, once I started chemo, I went everywhere and did almost everything I could, with limitations.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  2. 2
    • nickieg
    • Experience with Adenocarcinoma, Colore...
    over 4 years ago
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    Diagnosed

    Oh No

    I think being told I have Stage 111 type C colon cancer was the most frightening words I have ever heard. I was so scared and to tell you the truth, I still am. I am so afraid my cancer will come back and I try not to let it control me and what I do every day. BUt, it is like a black cloud hanging over me. I just pray and have faith that I am where I am supposed to be in my life. God is good and I am praying all the time and thanking Him too for every day.

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  3. 3
    • nickieg
    • Experience with Adenocarcinoma, Colore...
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    The chemo treatments themselves were relatively easy. Since I already had a port I only needed one needle going in and then 5 different IV's dripping into me for about 4 hours. This happened every other week. Then I had to take home one other part of the chemistry called the "baby bottle", wear it around my waist in a kind of fanny pack. That drained into me for 42 hours and I would have to go back to the hospital to have it removed. Believe it or not, the needle going in and out hurt a lot more than anything else. My side effects were not too bad but I was nauseous a lot and needed many different drugs to keep me from getting sick all day long. Again, I would not let the cancer or the chemo keep me from doing most of what I wanted to do.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  4. 4
    • nickieg
    • Experience with Adenocarcinoma, Colore...
    over 4 years ago
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    Nausea/Vomiting

    Side Effects

    The worst thing I had was the nausea but I was very depressed and anxious too. I got help with that and I suggest anyone going through cancer gets help with this part of the experience too. I lost my hair and THAT was really difficult since I am a very feminine, girlie girl. I found a wig I loved and wore it almost a full year but, at night, when you take the wig off, the cancer was always staring back at me, no matter how good I felt that day. I had terrible neuropathy in my hands and feet, chemo fog or chemo brain, severe fatique, low platelets that needed shots for that and bladder problems.

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  5. 5
    • nickieg
    • Experience with Adenocarcinoma, Colore...
    over 4 years ago
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    Birthday

    Celebration

    I am a little kid when it comes to my birthday anyway but ever since my cancer, I am so very grateful to have birthdays. I am only now just celebrating my hair coming back. It is not great but I am so happy to have it! Most importantly so far, I celbrated the end of treatment. Everyone was telling me to go out for steak and lobster but we had hot dogs and beans and I was just as happy. We have to watch our finances.

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  6. 6
    • nickieg
    • Experience with Adenocarcinoma, Colore...
    over 4 years ago
    nickieg's Avatar

    My mind/Sense of Humor

    Loss

    I was very, very depressed upon hearing my diagnosis. And scared. At first I was strong and said, "why NOT me, I am not special". But by my 6th chemo treatment I was crying on the way to the hospital "Why Me God?" I was also way too scared to joke about it so I was not very funny. And, if there is anything I love, it is humor and to laugh. My favorite on the planet is Mel Brooks and all his movies. I have seen them so many times I can do the dialogue from his most popular films. I love funny. But I had trouble relaxing. I did smile though. Everyone kept telling me about my smile. My oncologist kept calling me courageous and a warrior! It made me cry every time but I loved hearing it. He, by the way, was the most wonderful doctor for me. His personality suited me. He was sweet, kind and genuine. Again, I got help with my fear and depression through Memorial Sloan counceling. I mean that is all they do. It was very helpful and I strongly advise anyone, partners, care givers, everyone involved to get therapy. It works wonders! You do not have to handle cancer alone. There is a lot of support from many different sources. All good.

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  7. 7
    • nickieg
    • Experience with Adenocarcinoma, Colore...
    over 4 years ago
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    Decision Point

    This person has yet to add any details about this experience.

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  8. 8
    • nickieg
    • Experience with Adenocarcinoma, Colore...
    over 4 years ago
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    Home care

    Other Care

    I had some home care when I first came home because my incision was not healing well. I am a diabetic so it took longer. The hospital arranged for a nurse to come to the house every other day to clean my incision and change my bandages. Eventually my husband did it for me and he did a wonderful job.

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  9. 9
    • nickieg
    • Experience with Adenocarcinoma, Colore...
    over 4 years ago
    nickieg's Avatar

    Decision Point

    This person has yet to add any details about this experience.

    0 Comments