Monaanne's Journey with Invasive (Infiltrating) Ductal Carcin...

Survivor: Breast Cancer > Invasive (Infiltrating) Ductal Carcinoma

Patient Info: Finished active treatment more than 5 years ago, Diagnosed: about 12 years ago, Female, Age: 65

  1. 1
    • Monaanne
    • Experience with Invasive (Infiltratin...
    about 5 years ago
    Monaanne's Avatar

    Diagnosed

    Oh No

    Found tumor on self-exam... knew it was cancer. Couldn't get appointment for mammogram to confirm tumor for 2 months, because of policy of mammogram center to refuse immediate mammogram for palpable mass by patient, unless specific physicians order mammogram on "emergency basis". Refused to fight to get more immediate mammogram.... probably was trying for denial.

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  2. 2
    • Monaanne
    • Experience with Invasive (Infiltratin...
    about 3 years ago
    Monaanne's Avatar

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  3. 3
    • Monaanne
    • Experience with Invasive (Infiltratin...
    about 5 years ago
    Monaanne's Avatar

    Quadratectomy, sentinal node bx., partial lymph node disection

    Procedure or Surgery

    Had arm discomfort and some fluid (seroma) formation in breast, with drainage from incision.

    Went as Expected: Neutral/NA
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  4. 4
    • Monaanne
    • Experience with Invasive (Infiltratin...
    about 5 years ago
    Monaanne's Avatar

    Dose dense chemo and neulasta, all the other meds for nause and bowel dysfunction and mouth sores and low white cells and low red cells all used. Also took tamoxifen for 5 years after chemo.

    Drug or Chemo Therapy

    Dose-dense chemo with neulasta, and many side effects. Can't believe I agreed to do this, and on hindsight... would not have done it if I had known what I do now.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  5. 5
    • Monaanne
    • Experience with Invasive (Infiltratin...
    about 5 years ago
    Monaanne's Avatar

    External radiation

    Radiation

    Hated that it took so many weeks to complete, because of daily trips to radiation center. Skin was very sore and needed a lot of lotions and ointments to get through the entire treatment. Had a lot of fatigue during the process. Hate the permanent tattoos, and felt that there must be other options to them, with equivalent results (ie- semi-permanent markers that eventually will wash off).

    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  6. 6
    • Monaanne
    • Experience with Invasive (Infiltratin...
    about 5 years ago
    Monaanne's Avatar

    Chemo brain

    Side Effects

    In my opinion this is the most devastating permanent side effect. I was not prepared for "brain damage" as a result of chemo. , especially not on a permanent basis. Those in oncology were still entrenched in a position of complete denial regarding this side effect at the time I was undergoing chemo and in the first years afterwards. Now it has been documented to be a real and significant detriment associated with the intense chemo that breast cancer patients are subjected to. I believe this is one of the major reasons that oncologists became much more selective about whom they would subject to systemic chemo.

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  7. 7
    • Monaanne
    • Experience with Invasive (Infiltratin...
    about 5 years ago
    Monaanne's Avatar

    Was part of clinical study regarding chemobrain and utilized computerized program as part of this study.

    Clinical Trial

    I believe the on-line computer program did help, somewhat, with the side effects of chemobrain. However, there is only a small improvement in real improvement of some of the types of brain functions (memory, etc.). Eventually I became resigned to not being able to recover much of the cognitive deficits, and became more adept at using other tools and techniques for living without my brain functions. (Ie- learned to depend upon lists, rather than memory for grocery shopping or remembering what I plan to get done.)

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  8. 8
    • Monaanne
    • Experience with Invasive (Infiltratin...
    about 5 years ago
    Monaanne's Avatar

    Bilateral breast reductions and reconstructions

    Procedure or Surgery

    Following reconstructive surgery I developed lymphedema of side where cancer had been. The lymphedema was mainly in the hand on that side, and required many weeks of physical therapy and lymph exercises and wearing wraps and sleeves and gloves for at least 5 months. Eventually, perhaps because I was so vigilant and consistent with the exercises and wrapping and wearing of the elastic sleeves and gloves, I was able to arrest the problem and have not required use of these items for the last 5 years. I still have some small increased swelling of my thumb and 1st finger on that side, but it is very difficult to notice for anyone but myself. On hot days I always keep my arm elevated for periods of time, in order to avoid recurrence of the lymphedema, and always wear the sleeve if flying.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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  9. 9
    • Monaanne
    • Experience with Invasive (Infiltratin...
    about 3 years ago
    Monaanne's Avatar

    Side Effects

    This person has yet to add any details about this experience.

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