ncheather03's Journey with Medulloblastoma

Survivor: Brain and Spinal Cord Tumors in Adults > Medulloblastoma

Patient Info: Finished active treatment more than 5 years ago, Diagnosed: almost 25 years ago, Female, Age: 32

  1. 1
    over 4 years ago
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    Diagnosed

    Oh No

    At almost 8yrs old I was a little confused but knew CANCER was bad and could kill!

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  2. 2
    over 4 years ago
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    Surgery

    Procedure or Surgery

    I was too young to remember details!

    Went as Expected: Strongly Agree
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  3. 3
    over 4 years ago
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    Other

    Side Effects

    After surgery, I had to relearn to walk and talk. The tumor effected my memory, coordination, thought process, and speech.

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  4. 4
    over 4 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    I remember having a port and while receiving a blood transfusion, they did not have a pediatric nurse on the floor so it took 5 or 6 men to hold me down while they stuck my arm numerous times blowing veins. My mom finally told them to call a ped nurse! Think she was on fire! Still hate needles to this day but want a tattoo sooooo bad!

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  5. 5
    over 4 years ago
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    Drug or Chemo Therapy

    I don't remember any of this!

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  6. 6
    over 4 years ago
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    Other

    Loss

    Being a girl, it was horrifying loosing my hair and still effects me today! I also have some memory loss, hearing loss, and loss of coordination.

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  7. 7
    over 4 years ago
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    Radiation

    I don't remember details

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  8. 8
    over 4 years ago
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    Other

    Procedure or Surgery

    Removal of medical port

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  9. 9
    over 4 years ago
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    Remission

    Celebration

    I don't remember when I went into remission. I had a great party at the Pediatric Oncoloy Clinic but unfortunatly don't remeber that either.

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  10. 10
    over 4 years ago
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    Other

    Celebration

    My family threw a party/family gathering in my honor

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