Cindy's Journey:

  1. 1 Other Care Icon Other Care
  2. 2 Drug or Chemo Therapy Icon Drug or Chemo Therapy
  3. 3 Procedure or Surgery Icon Procedure or Surgery
  4. 4 Procedure or Surgery Icon Procedure or Surgery
  5. 5 Procedure or Surgery Icon Procedure or Surgery
  6. 6 Oh No Icon Oh No
  7. 7 Drug or Chemo Therapy Icon Drug or Chemo Therapy
  8. 8 Side Effects Icon Side Effects
  9. 9 Side Effects Icon Side Effects
  10. 10 Side Effects Icon Side Effects
  11. 11 Side Effects Icon Side Effects
  12. 12 Celebration Icon Celebration
  13. 13 Procedure or Surgery Icon Procedure or Surgery
  14. 14 Side Effects Icon Side Effects
  15. 15 Drug or Chemo Therapy Icon Drug or Chemo Therapy
  16. 16 Side Effects Icon Side Effects
  17. 17 Side Effects Icon Side Effects
  18. 18 Side Effects Icon Side Effects
  19. 19 Side Effects Icon Side Effects
  20. 20 Drug or Chemo Therapy Icon Drug or Chemo Therapy
  21. 21 Side Effects Icon Side Effects
  22. 22 Side Effects Icon Side Effects
  23. 23 Side Effects Icon Side Effects
  24. 24 Side Effects Icon Side Effects
  25. 25 Side Effects Icon Side Effects
  26. 26 Side Effects Icon Side Effects
  27. 27 Celebration Icon Celebration
  28. 28 Celebration Icon Celebration
  29. 29 Celebration Icon Celebration
  30. 30 Celebration Icon Celebration
  31. 31 Celebration Icon Celebration
  32. 32 Celebration Icon Celebration
  33. 33 Celebration Icon Celebration

Survivor: Ovarian and Fallopian Tube Cancer > Epithelial Ovarian Carcinoma > Endometrioid

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 6 years ago, Female, Age: 58, Stage II

  1. 1
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Hospitalization

    Other Care

    I went to see doctor because I had abdominal pain whenever I moved and then started to get a low fever. My doctor and I thought I might be having an appendicitis. My doctor called the hospital to check me in while I was there. I had CT scan, blood tests, and sonograms. My doctors decided that I had a high probability of having ovarian cancer with a tumor about the size of a softball. My doctor sent me another hospital in another city about 3-1/2 hours away for surgery done by an expert surgeon about 1-1/2 weeks later. I was in good spirits despite the bad news. I was more worried more about being in pain than I was about dying. I had lots of people world-wide praying for me. I was amazed about the many people who cared about me. Several people visited me while I was in the hospital even when I was a 3-1/2 hour drive away.

    0 Comments
  2. 2
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Antibiotics

    Drug or Chemo Therapy

    I took antibiotics until I had my surgery.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  3. 3
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Abdominal hysterectomy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  4. 4
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Bilateral salpingo-oophorectomy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  5. 5
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Debulking surgery

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  6. 6
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Diagnosed

    Oh No

    I had total abdominal hysterectomy, bilateral salpingoophrectomy, pelvic mass removal, and debulking at the same time. After I woke up from the surgery, the first thing I asked was if it was cancer and the answer was yes. The surgeon removed all of the cancer that he found. The initial diagnosis was stage 3 because there was a false positive for one of my lymph nodes but after the pathology report was completed they changed the diagnosis to stage 2. I took the diagnosis very well and just concentrated on getting better. I spent about 5 days in the hospital. The third day was the worst day. After I threw up that day, I felt much better. My husband drove me back home (about 3-1/2 hour drive) after the doctor felt I was ready.

    0 Comments
  7. 7
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Pain medicine

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  8. 8
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Hot flashes

    Side Effects

    I had lots of hot flashes during cancer treatments and a few months after.

    1 Comment
  9. 9
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Urinary changes (frequency, urgency)

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  10. 10
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Weight loss

    Side Effects

    I had some weight loss during my cancer treatments but have gained it all back since then.

    0 Comments
  11. 11
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Vaginal dryness or irritation

    Side Effects

    During cancer treatments.

    0 Comments
  12. 12
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Remission

    Celebration

    No cancer found during PET / CT Scan

    1 Comment
  13. 13
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    Outpatient surgery at hospital. Removal of the port was in the doctor's office after my chemo was over.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  14. 14
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Rash

    Side Effects

    I got a rash from the antibacterial scrub (Hibiclens) the doctor used clean my skin before the chemo port surgery.

    0 Comments
  15. 15
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Starting about 7 weeks after my cancer surgery, I went to my doctor's office and received Paclitaxel (Taxol) (3mg) and Carboplatin (600mg) 6 times with 3 weeks between sessions. For each chemo: the nurse first gave me a blood test, taking the blood via my chemo port. After they found out my blood was okay, I took an anti-nausea pill by mouth. Then they gave me more drugs to counteract side affects from the chemo via my chemo port. They gave me the Taxol very slowly over several hours. Then they gave me the Carboplatin faster over about an hour. It took about 5 hours total per session. A week after each chemo I got another blood test. The side affects for each chemo got worse (the 1st was easiest the 6th was the worst). 1st Chemo: No major side affects the day of the chemo. The day after I felt fine except that I went to bed earlier than normal. Two days after the chemo I had minor aches and pains and rested all day. The third day after my 1st chemo, I had constipation. I went to back to work on the fourth day after. I took off work the fifth day because of a bad backache. I went back to work the six day after. About a week later, I had some ankle pain. Two weeks after the chemo, my scalp and eyebrows started to become itchy and my hair started falling out. My husband used clippers to remove my hair 3 days after that. 2nd Chemo: No side major affects the day of the chemo and the next day. On the second day after I was okay except that my fingertips began feeling a little numb. I slept off and on the third and fourth day after. I was much better on the fifth day after. I was on vacation the week and 1/2 before and after the chemo which I had previously scheduled before I knew I was sick. 3rd Chemo: The medication that they gave me just prior to giving me the chemo made me feel weird and very dizzy. I think it was for relaxing me. I asked them not to give me that particular medication again. The day after the chemo I was okay. The second, third and fourth day after the 3rd chemo I was tired and had constipation. The fifth day after I had leg aches below my knees and my fingertips were numb. I went back to work on the sixth day afterword but started to get a urinary tract infection. I got medication for it about a week later. 4th Chemo: No major side affects the day of the chemo. Did some errands the morning of the next day and rested during the afternoon. Took it easy and rested the second and third day after my 4th chemo. The fourth day after, my fingertips were tingly and my legs below my knees were achy. I also had toe cramps and my toes and feet felt tingly (peripheral neuropathy). Two weeks later the numbness started spreading to the ball of my foot. 5th Chemo: Felt very hot, sweaty and irritable during the chemo. The nurse gave me ice to cool me off. I felt very irritable the day after the fifth chemo also. The fourth day after, I went to the library and grocery store during the morning but wasn't up to doing too much walking. I went back to work the 6th and 7th day after the 5th chemo. My blood test 8 days after the chemo showed that my white blood count was low. I got a shot that day and the next two days to bring it up. The shot caused me to get a low fever. After getting the shots, I went back to the doctor's office for blood test which showed my white blood count was back in the safe range. I went back to work the next day. 6th Chemo: I was slightly nauseous during the 6th chemo. I had constipation the day after and 2nd day after the chemo. The 3rd day after, my feet hurt and I took some anti-nausea medication because I was slightly nauseous. The 4th day after, my feet hurt and I had random aches and pains. The blood test a week after my 6th chemo showed my white blood cell count low. I received a shot to bring it up that day and over the next 2 days. I did not get a fever like the first time I got the shots after my 5th chemo. After the 3 shots, I got another blood test. My white blood count was worse. So, they gave me 3 more shots, 1 per day. The day after that, I got another blood test. My white blood cell count was back in the safe range. I went back to work about 2-1/2 weeks after my 6th chemo.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  16. 16
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Constipation

    Side Effects

    I had constipation several days after each chemo.

    0 Comments
  17. 17
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Fatigue (tiredness)

    Side Effects

    I had tiredness starting a couple of days after each chemo and lasting for a few days.

    0 Comments
  18. 18
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Hair loss (alopecia)

    Side Effects

    Started 2 weeks after first chemo. I wore a wig to work. I went bald around the house. I wore hats on my days off.

    0 Comments
  19. 19
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Low white blood cell counts (neutropenia)

    Side Effects

    I had to get shots to bring my white blood cell count up after my 5th and 6th chemo.

    0 Comments
  20. 20
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Medicine for low white blood cell count

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  21. 21
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Fever

    Side Effects

    I had fever as a reaction to the drug they gave me to bring my white blood cell count up.

    0 Comments
  22. 22
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Bladder problems

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  23. 23
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Mood changes

    Side Effects

    I felt very irritable during my 5th chemo

    0 Comments
  24. 24
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Flu-like symptoms (fever, chills, sweats)

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  25. 25
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Pain

    Side Effects

    Some leg pain in the calves of my legs and other occasional random pains.

    0 Comments
  26. 26
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Nerve damage (peripheral neuropathy)

    Side Effects

    It is now 7 months after my last chemo and I still have numbness in my feet - primarily in my toes and part of my feet. It seems to be getting better very slowly.

    0 Comments
  27. 27
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Finished treatment

    Celebration

    Had a PET / CT Scan a month after my last Chemo and no cancer was found.

    0 Comments
  28. 28
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Remission

    Celebration

    This person has yet to add any details about this experience.

    0 Comments
  29. 29
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Hair is back

    Celebration

    I stopped wearing a wig and hats about 3 months after my last chemo treatment.

    0 Comments
  30. 30
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 5 years ago
    Cindy's Avatar

    Remission

    Celebration

    Had an Abdominal CT Scan and no evidence of cancer found 7 months after last chemo.

    0 Comments
  31. 31
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 4 years ago
    Cindy's Avatar

    Anniversary

    Celebration

    It has been just about two years since my surgery to remove my cancer. I just got the results of my CT scan and no signs of cancer! Hip-Hip-Hooray! My doctor said one more year of no cancer findings and I should be considered cured.

    2 Comments
  32. 32
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    almost 3 years ago
    Cindy's Avatar

    Anniversary

    Celebration

    It has been 3 years since my last chemo treatment and still no evidence of cancer. My doctor said that I am most likely cured because returning cancer usually happens within the first 3 years. If I make it 5 years, then I will be considered totally cured.

    0 Comments
  33. 33
    • Cindy
    • Experience with Endometrioid, Ovarian or...
    over 1 year ago
    Cindy's Avatar

    Anniversary

    Celebration

    It's been 5 years since I was diagnosed with cancer and still no evidence of it returning. Hip-hip-hurray!!! I participated in a cancer survey and just got an e-mail that I will receive a check for $300 for doing some videos and taking pictures describing my cancer journey. And its my birthday this weekend. Celebration time!!!!

    1 Comment