bjsimme's Journey with Skin Cancer - Melanoma

Patient: Skin Cancer - Melanoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 8 years ago, Female, Age: 55, Stage IV, BRAF mutation positive: Yes, c-kit positive: Don't Know

  1. 1
    • bjsimme
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
    bjsimme's Avatar

    Simple removal surgery

    Procedure or Surgery

    Just did bioposy, everything went well. My first bioposy was in 1984. My cancer came back 27 years later every where. I worked at the local Wal-Mart in the accounting office our store was going thru a hugh remodel from store to a super center. My body could not process all of the chemicals that was released in the air I had a kidney infection for about 6 months. My Dr said my immune system went hay wired and had to have picked up a dorment cell around the old site it caused the cancer to spread all thru me internally.....kidney, liver, lung, brain and so many tissue turmors they couldn't count them all.

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  2. 2
    • bjsimme
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
    bjsimme's Avatar

    High Dose IL2

    Drug or Chemo Therapy

    You have to be in ICU for this treatment, you get it every 8 hrs if your numbers are good. Suppose to do 6 rounds at 15 treatments. I was able to do only 9 rounds of the IL2 for 5 different weeks and for the last week I could only handle 3 doses. I did these at Ruby in Morgantown WV I was in SICU for all 6 of my visits, nurses and Dr were great that is the only reason I was able to do so many rounds of treatment. The treatment is very hard to go thru. It did shrink several of my turmors. I then did Impulumalab (wrong spelling) This drug I only took 3 rounds of treatment got to sick had to end up taking predizone major dose and that made some turmors grow. I know am taking Zobraf (wrong spelling) I take 8 pills a day. Has given me some strength back. The cancer had eaten into my hip bone I now am on a walker all the time. Dr. office just called blood low need 2 pints will get that on Wed,

    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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