mawehner's Journey with Non-Hodgkin Lymphoma (NHL)

Patient: Non-Hodgkin Lymphoma (NHL)

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 5 years ago, Male, Age: 71

  1. 1
    • mawehner
    • Experience with Non-Hodgkin Lymphoma ...
    over 4 years ago
    mawehner's Avatar

    BTK Inhibitor(PCI32765)

    Clinical Trial

    I am currently on a clinical trial with BTK Inhibitor. I had some chemo(FCR) but it dragged my ANC counts down to zero. I also had eight sessions of Ofatumumab before getting on the clinical trial. I am on week eight of the clinical and will get CAT Scans after week eight to see if my Lymph nodes are shrinking. I suspect they are but my White Blood Counts and ANC counts are very low. I have Lymphoma with 17P and 11Q chromozone deletions. Not a pretty scenerio but I feel pretty good and hoping for the best.

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  2. 2
    • mawehner
    • Experience with Non-Hodgkin Lymphoma ...
    about 4 years ago
    mawehner's Avatar

    BTK Inhibitor(PCI 32765)

    Clinical Trial

    I have been on BTK Inhibitor PCI 32765 for 5 months and it is working wonders. My Lymph nodes are all reducing in size. My white counts are slow to recover but they are making progress.

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