ChrisC's Journey with Hodgkin Disease

Survivor: Hodgkin Disease

Patient Info: Finished active treatment more than 5 years ago, Diagnosed: almost 33 years ago, Female, Age: 65, Stage II

  1. 1
    • ChrisC
    • Experience with Hodgkin Disease
    about 5 years ago
    ChrisC's Avatar

    Diagnosed

    Oh No

    I was 33 years old and 4 months pregnant with my 3rd child when I was diagnosed. Everyone I had known with this diagnosis was deceased. All I could think of was will my unborn child ever be born and what if I didn't survive, who would take care of my family. I was terrified. Due to my pregnancy, the usual battery of diagnostic testing and staging could not be done. So doctors did what they could and worked on a "best guess" for the stage, deciding on nodular sclerosing Hodgkins Disease stage 2a. I did ask for a second opinion and went to Dana Farber, Jimmy Fund for this. I had been given a couple of options for treatment: 1. a minimantel of radiation while pregnant and then a splenectomy after my baby was born and then the rest of the radiation aftewr the splenectomy. 2. no treatment until the baby was born. I chose the first option.

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  2. 2
    • ChrisC
    • Experience with Hodgkin Disease
    about 5 years ago
    ChrisC's Avatar

    External radiation

    Radiation

    My first round of radiation was 6weeks, monday through friday. the only real side effects I experienced was tiredness and a radiation burn on my left shoulder. the 2nd round was for 6 wekks and was started when my baby was 6 weeks old. Again I was very itred and had a radiation burn in my throat which caused difficulty swallowing and eating. all of this passed when the radiation was completed.

    Painless Experience: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • ChrisC
    • Experience with Hodgkin Disease
    about 5 years ago
    ChrisC's Avatar

    Surgery

    Procedure or Surgery

    I had a splenectomy 6 weeks after my son was born.

    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
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  4. 4
    • ChrisC
    • Experience with Hodgkin Disease
    about 5 years ago
  5. 5
    • ChrisC
    • Experience with Hodgkin Disease
    about 5 years ago
    ChrisC's Avatar

    Remission

    Celebration

    This person has yet to add any details about this experience.

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