Grandjaymiteju's Journey:

Survivor: Kidney Cancer

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 6 years ago, Female, Age: 63, Stage III

  1. 1
    over 4 years ago
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    Lost loved one

    Loss

    MANY LOVED ONES................................

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  2. 2
    over 4 years ago
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    Diagnosed

    Oh No

    I JUST KNEW IT WOULD GO AWAY....IT HAD TO!!!!!!

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  3. 3
    over 4 years ago
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    Money

    Oh No

    This person has yet to add any details about this experience.

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  4. 4
    over 4 years ago
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    Flu-like symptoms (fever, chills, sweats)

    Side Effects

    Hi There. I was diagnosed with colorectal cancer first in Nov of 2007. It was my 7th colonoscopy. BUT this was different. I just knew it. When my doctor wanted to see me "himself" and not his P.A. I knew. But I kinda knew beforw. I have up to date been in the hospital 48 times for various things and have CVID, common variable immune deficiency. Which I infuse myself for every week. I also have been paralyzed at 26 with a virus Guilliam Beret..and so much more. So I know my body very well. I was given radiation for 31 treatments. The treatments were fine, enough, BUT...I becme very very red and burnt like.. and most said it was the blisters you get...NOT! Long story short, I went to my gyno and asked her to run a secondary infection test. Days later I found I had MRSA, in one very sensitive area. With the blisters this proved very painful. I had to go to OPIS for infusions and was immediately away that I was having an allegic reaction, but my skin was dark and no one could really see the rash. It spread like wildfire. In a few days they changed my meds, yet the rash continued. I kept at this for about 7 days. Then had to stop and be put on cortisone by my immunologist/allergist. Let me tell you It was very sore. I continued radiation and infusions. Meanwhile I was on my infusions for my immune system as well. Through out this I was at school for my grandson most every day. It was exhausting, or so I thought. I have many other auto immune disorders which are exhausting as well. After about 8 monthsI felt like something else was going on. I could not explain it. But went to several doctors, and no one thought much of what I said. They thought it was "STRESS".... :) I knew it was not. I even was turned down by Mayo clinic, they said I was too complex. WOW! By my 10th colonoscopy I believe I told them that I felt something was wrong....they listened. The doc asked if I wanted a cat scan. I said anything please, I am sure something is so wrong. Well the next day I think I received a call. She was great and slowly told me the good stuff, then told me that today..not tomorrow I had to get a urologist or nephrologist! I did. They then told me I had a huge mass on my kidney. I went to the urologist after telling them "thank you"..they listened! He then told me it was buried down deep in my kidney. It was very large and was not sure it was cancer till I was opened up. I certainly knew it was. The odd thing I thought was I had a pet scan only months before, until I learned that kidney cancer cannot be seen in pet scans. They can only be seen in cat scans. I helped my church run a summer week program and had to get things in order, and then the robotic surgery.... So when I woke, I was so sick, but I knew it was pneumonia. I hjave had lung issues most of my life. They did not really again believe that.. :) Said it was gas.. ok? Welll by the next day I had severe pneumonia and baladder infections etc. NOT the greatest experience, BUT it makes you know you must know your body..no one else will! Eventually I was let out of the hospital after about a week. All in all it was cancer in the shape of an ice cream cone..They had to reopen me while under. They had to keep cutting until they got a clean slice. I was laid up for about 5 weeks...THEN OFF TO DISNEY! This has not been a picnic, BUT since then has been worse. I gained 44 lbs and no one knew why or knows why. I have become much more exhausted, and pain everywhere. STRANGE.... I take one day at a time and try to help with ACS and other areas of cancer where I can. It does not only affect US..it affects everyone and our relationships. When I found out about my first cancer I never was upset I knew I would get rid of this awful thing! God could never let me die..NOT NOW! I was even accused of being in denial. Cause I smiled through allot. BUT This is nothing to ever truky smile about. We need to knock it out!!!!!! Everyone! I lost my mom, my dad 8 aunts and uncles and both my brothers now have it. I do not want to see my children and or grandchiuldren live with this horrible disease! DO YOU? I just want to feel bettter and I am having a very hard time with getting back on track. Believe it or not what I wrote is just a drop of what really happened. BUT just smile be possitive and find someone to share with. That is so impotant. Also learn learn learn! We can stop this before it gets worse and we need to have people we can depend on if possible and trust. Helping to raise my grandson helps allot, having reasons to live helps! I have 3 other grandchildren. I have 3 children. I know they never really could imagine what cancer does to your body..... it. Its so hard for them. I never ever want them to go through this. Or even have to imagine. PLEASE HELP do one thing for the destruction of this disease! I do not sleep and have nightmares, BUT I look healthy FUNNY.... so no one can truly understand..cancer may be gone for now..hopefully forever...BUT............what it leaves behind is sometimes worse. I am so blessed I have been spared and God let me be one to live. So many are not so blessed. I have lots more years. I appreciate life like most cant imagine, I have almost died from many other things in my life. I'm not letting cancer take me down!!!! DON'T LET YOU!

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  5. 5
    over 4 years ago
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    Fatigue (tiredness)

    Side Effects

    OH WELL................THATS "LIFE"

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  6. 6
    over 4 years ago
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    Hair loss (alopecia)

    Side Effects

    My hair keeps falling out and funnnnny I use to have very curley hair..wild as that is........ANYTHING IS POSSIBLE! BUT I'M STILL ALIVE!!!! SO AWESOME!

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  7. 7
    over 4 years ago
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    External radiation

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  8. 8
    over 4 years ago
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    Surgery

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  9. 9
    over 4 years ago
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    Home care

    Other Care

    Just follow up from after effects...etc....all expected in my journey.

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  10. 10
    over 4 years ago
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    JUST TO BE ALIVE

    Celebration

    JUST TO BE ALIVE AND HELP OTHERS! AND SHARE THAT YOU NEED TO KNOW YOUR BODIES! DOCTORS CAN BE AWESOME...BUT WITHOUT YOUR HELP THEY CANT HELP YOU ALWAYS! NEVER BE AFRAID TO SHARE WHAT "YOU" THINK.....

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