StacyG's Journey with Adenocarcinoma, Unknown Primary

Spouse/Partner: Cancer of Unknown Primary > Adenocarcinoma

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: over 5 years ago, Male, Age: 68

  1. 1
    • StacyG
    • Experience with Adenocarcinoma, Unknown...
    over 5 years ago
    StacyG's Avatar

    pathological fracture in left hip

    Oh No

    The day after I first posted, my husband coughed and sustained a pathological fracture in his left femur. Although it had been stabilized, he went into spasm and the tendon pulled off a chunk of diseased bone. He has been hospitalized since for pain control, and underwent the EDG/colonoscopy that had already been scheduled yesterday. Of course, those tests were both clear and we still have no idea of the primary source. They began radiation to his bone mets today and we are going to be referred for a second opinion prior to starting chemotherapy treatments. The concern for us still remains that chemo protocol for an unknown source makes things a little trickier.

    0 Comments
  2. 2
    • StacyG
    • Experience with Adenocarcinoma, Unknown...
    over 5 years ago
    StacyG's Avatar

    EGD and colonoscopy

    Procedure or Surgery

    Again, results of EGD and colonoscopy were clear, not revealing any primary tumor. Experience was difficult (primarily preparation) due to physical limitations secondary to recent fracture and ongoing muscle spasms in hip.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  3. 3
    • StacyG
    • Experience with Adenocarcinoma, Unknown...
    over 5 years ago
    StacyG's Avatar

    External radiation

    Radiation

    Just began radiation therapy to bone mets in right scapula, right hip/pelvis, and left femur. First treatment today - painful in moving him into position due to recent fracture and continued muscle spasms in left hip, otherwise uneventful. Have been told there will be minimal side effects, perhaps some dry skin at entry/exit sites, due to lesions being treated all being located on the "edges" and not involving his core or abdomen.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  4. 4
    • StacyG
    • Experience with Adenocarcinoma, Unknown...
    over 5 years ago
    StacyG's Avatar

    Second Opinion

    Other Care

    Well, after 10 external radiation treatments that increased rather than decreased my husband's bone pain, we went to M.D. Anderson Cancer Center in Houston, TX for a second opinion. We were very impressed with the care provided there; however, we were still unable to locate the primary source of his cancer! The doctor there gave her recommendations for a chemotherapy regimen, but cisplatin is not available (we were told there is a nationwide shortage of this, among other, drugs) so the regimen had to be altered to Gemzar/carboplatin. There was not enough of the biopsy specimen to obtain a molecular profile which may have helped to narrow down the primary.

    0 Comments
  5. 5
    • StacyG
    • Experience with Adenocarcinoma, Unknown...
    over 5 years ago
    StacyG's Avatar

    Pathological fractures

    Oh No

    Frank has sustained additional pathological fractures in his right scapula and the right side of his pelvis. Both were caused by negligible force: tossing a towel aside and retching from nausea. He has not been able to walk more than a few steps with a walker due to pain,

    0 Comments
  6. 6
    • StacyG
    • Experience with Adenocarcinoma, Unknown...
    over 4 years ago
    StacyG's Avatar

    Lost loved one

    Loss

    Just wanted to post an update. It has been a long time since I posted. My husband, Frank, lost his battle with CUP on May 3, 2012. He fought so hard but it is more difficult, I think, when your foe is unknown. I'm learning how to go on without him after 30 years, but so grateful he is no longer suffering.

    2 Comments