Texanana's Journey with Papillary, Transitional Cell (Urothel...

Survivor: Bladder Cancer > Transitional Cell (Urothelial) Carcinoma > Papillary

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 6 years ago, Female, Age: 68, Stage Recurrent

  1. 1
    • Texanana
    • Experience with Papillary, Transition...
    over 4 years ago
    Texanana's Avatar

    Lost loved one

    Loss

    My son died July of 2009. I was in shock and the pain from his loss left me inconsolable. Four months after his death I knew I was in trouble...

    0 Comments
  2. 2
    • Texanana
    • Experience with Papillary, Transition...
    over 4 years ago
    Texanana's Avatar

    Misdiagnosed

    Oh No

    After continued hemorrhaging, with trips to the hospital, I decided I should see a specialist. Now, how about this "Oh No!". I was told at the hospital that I had a bladder infection. I had experienced bladder infections before and knew this was more than an infection. I picked up the cat scan and report from the hospital, it read, "Large tumor in the bladder." It was actually the size of a softball!

    0 Comments
  3. 3
    • Texanana
    • Experience with Papillary, Transition...
    over 4 years ago
    Texanana's Avatar

    Surgery

    Procedure or Surgery

    The tumor was so large that two surgeries were needed to remove the entire tumor. I believe I rushed back to work quicker than I should have. I took three weeks off with the first surgery, about ten days with the second. I recieved treatment the entire summer of 2011, but still had a small spot reappear in the fall of 2011, which sent me back for another surgery November of 2011. For the third surgery, I again took only a couple weeks off from work, to recupe.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  4. 4
    • Texanana
    • Experience with Papillary, Transition...
    over 4 years ago
    Texanana's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I was given BCG treatments once a week for six weeks. I had one week with barely any side effects what so ever. Then I had several that made me very sick, with flu-like symptons; aching, fever, unable to particapate in life. Fortunately, the worse part of the symptoms only lasted a few days and then I was at least able to get to work, although I wasn't very productive. Once again I only lost two days from work, but if I had it all to do over again, I would be much kinder to myself.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  5. 5
    • Texanana
    • Experience with Papillary, Transition...
    over 4 years ago
    Texanana's Avatar

    Flu-like symptoms (fever, chills, sweats)

    Side Effects

    I also had difficulty urinating due to the BCG injected directly into my bladder which caused irritation.

    0 Comments
  6. 6
    • Texanana
    • Experience with Papillary, Transition...
    over 4 years ago
    Texanana's Avatar

    I had other health issues

    Other Care

    In August of 2011, I also experienced a mini stroke. While having an MRI, I went into anaphylactic shock due to an allergic reaction to the gadolinium (dye). I recieved CPR, life saving intervention with intubation (ventilator was installed with ICU treatment. It has taken me over one year to feel somewhat recovered from this trauma.

    0 Comments
  7. 7
    • Texanana
    • Experience with Papillary, Transition...
    over 4 years ago
    Texanana's Avatar

    I had to make a decision to continue working full time with insurance or work only a few days a week without insurance.

    Decision Point

    I felt as though I was emotionaly and physically worn out. I made a decision to go for the part time work; work 20 hrs a week and rest the other 20 hrs. I realize I am taking a chance, but I felt I needed time to rest and give my body a chance to heal.

    0 Comments
  8. 8
    • Texanana
    • Experience with Papillary, Transition...
    over 4 years ago
    Texanana's Avatar

    Remission

    Celebration

    After surviving the last three years I feel I have earned the right to celebrate!!! I have guardianship of two grandchildren 11yrs and 10yrs old. I finally feel excited to participate in all the oppurtunities that our community, schools and church have to offer! It's time to enjoy life!!! We walked "The Walk " this past Spring and my grandchildren proudly wore their "Caretakers " ribbons!! How awesome is this bond of love and commitment!

    0 Comments