vizslagirl's Journey:

Survivor: Breast Cancer > Inflammatory Breast Cancer

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: almost 12 years ago, Female, Age: 42, Stage IIIC, HER2 Positive: No, ER Positive: Yes, PR Positive: Yes

  1. 1
    • vizslagirl
    • Experience with Inflammatory Breast...
    about 5 years ago
    vizslagirl's Avatar

    Diagnosed

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  2. 2
    • vizslagirl
    • Experience with Inflammatory Breast...
    about 5 years ago
    vizslagirl's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  3. 3
    • vizslagirl
    • Experience with Inflammatory Breast...
    about 5 years ago
    vizslagirl's Avatar

    Double Mastectomy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  4. 4
    • vizslagirl
    • Experience with Inflammatory Breast...
    about 5 years ago
    vizslagirl's Avatar

    Breast Reconstruction (Implant)

    Procedure or Surgery

    i have an awesome plastic surgeon and it had a GREAT impact on my life to have boobs again!!!!

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  5. 5
    • vizslagirl
    • Experience with Inflammatory Breast...
    about 5 years ago
    vizslagirl's Avatar

    External radiation

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  6. 6
    • vizslagirl
    • Experience with Inflammatory Breast...
    about 5 years ago
    vizslagirl's Avatar

    Hormone therapy

    Drug or Chemo Therapy

    tamoxifen

    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  7. 7
    • vizslagirl
    • Experience with Inflammatory Breast...
    over 4 years ago
    vizslagirl's Avatar

    cancer spread to dura (brain membrane) also oncologist issues...

    Oh No

    had MAJOR communication issues with former oncologist since last fall...symptoms never completely went away after radiation last fall but i was persistant & FINALLY got the Fellow's attention a month ago. briefly landed me back in the hospital but just finished 4th radiation treatment (3rd since bone metastisis), have found a new oncologist that COMMUNICATES & will totally re-evaulate the status of my disease. overall i feel pretty positive. :)

    0 Comments
  8. 8
    • vizslagirl
    • Experience with Inflammatory Breast...
    over 4 years ago
    vizslagirl's Avatar

    Internal radiation

    Radiation

    the usual fatigue & foggy mind from RT. stepping down off decadron isn't much fun but everything is going along as expected so far.

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  9. 9
    • vizslagirl
    • Experience with Inflammatory Breast...
    over 4 years ago
    vizslagirl's Avatar

    Fatigue (tiredness)

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  10. 10
    • vizslagirl
    • Experience with Inflammatory Breast...
    over 4 years ago
    vizslagirl's Avatar

    getting a new oncologist

    Decision Point

    i think i've found a new oncologist that will realy ANALYZE my disease, come up with a gameplan, & COMMUNICATE that plan to me.

    1 Comment
  11. 11
    • vizslagirl
    • Experience with Inflammatory Breast...
    almost 4 years ago
    vizslagirl's Avatar

    Cancer has spread/Metastasized

    Oh No

    it has come back in my brain

    0 Comments
  12. 12
    • vizslagirl
    • Experience with Inflammatory Breast...
    almost 4 years ago
    vizslagirl's Avatar

    Other

    Radiation

    extreme fatigue

    Painless Experience: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  13. 13
    • vizslagirl
    • Experience with Inflammatory Breast...
    almost 4 years ago
    vizslagirl's Avatar

    Targeted therapy

    Drug or Chemo Therapy

    Taxol & decadron

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  14. 14
    • vizslagirl
    • Experience with Inflammatory Breast...
    almost 4 years ago
    vizslagirl's Avatar

    Fatigue (tiredness)

    Side Effects

    9.9 out of 10

    0 Comments
  15. 15
    • vizslagirl
    • Experience with Inflammatory Breast...
    almost 4 years ago
    vizslagirl's Avatar

    met with new oncologist and new P.A.

    Decision Point

    i think i have the right caregivers now.

    0 Comments