Christa's Journey with Invasive (Infiltrating) Ductal Carcin...

  1. 1 Oh No Icon Oh No
  2. 2 Procedure or Surgery Icon Procedure or Surgery
  3. 3 Oh No Icon Oh No
  4. 4 Decision Point Icon Decision Point
  5. 5 Procedure or Surgery Icon Procedure or Surgery
  6. 6 Procedure or Surgery Icon Procedure or Surgery
  7. 7 Oh No Icon Oh No
  8. 8 Decision Point Icon Decision Point
  9. 9 Procedure or Surgery Icon Procedure or Surgery
  10. 10 Oh No Icon Oh No
  11. 11 Drug or Chemo Therapy Icon Drug or Chemo Therapy
  12. 12 Side Effects Icon Side Effects
  13. 13 Side Effects Icon Side Effects
  14. 14 Side Effects Icon Side Effects
  15. 15 Side Effects Icon Side Effects
  16. 16 Side Effects Icon Side Effects
  17. 17 Celebration Icon Celebration
  18. 18 Drug or Chemo Therapy Icon Drug or Chemo Therapy
  19. 19 Celebration Icon Celebration
  20. 20 Drug or Chemo Therapy Icon Drug or Chemo Therapy
  21. 21 Procedure or Surgery Icon Procedure or Surgery
  22. 22 Procedure or Surgery Icon Procedure or Surgery
  23. 23 Procedure or Surgery Icon Procedure or Surgery
  24. 24 Procedure or Surgery Icon Procedure or Surgery
  25. 25 Procedure or Surgery Icon Procedure or Surgery
  26. 26 Side Effects Icon Side Effects
  27. 27 Side Effects Icon Side Effects
  28. 28 Side Effects Icon Side Effects
  29. 29 Side Effects Icon Side Effects
  30. 30 Side Effects Icon Side Effects
  31. 31 Celebration Icon Celebration

Survivor: Breast Cancer > Invasive (Infiltrating) Ductal Carcinoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 6 years ago, Female, Age: 42, Stage II, HER2 Positive: Yes, ER Positive: Don't Know, PR Positive: Don't Know

  1. 1
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Found a lump!

    Oh No

    Found a lump during my monthly self breast exam. Went to FP just to be safe and she sent me that day to St. Vincent's for testing.

    0 Comments
  2. 2
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Biopsy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  3. 3
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Diagnosed

    Oh No

    Learned it was cancer at age 36 and my husband and I had not started our family yet. Very scared as I have no family history.

    0 Comments
  4. 4
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Surgery Type

    Decision Point

    Decide to do lumpectomy instead of bilateral mastectomy against advice of my ONC and surgeon.

    0 Comments
  5. 5
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  6. 6
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Lumpectomy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  7. 7
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Margins not clean!

    Oh No

    Surgery not successful. Margins not clean.

    0 Comments
  8. 8
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Surgery Type

    Decision Point

    Doctors again strongly urged me to have both breasts removed. I was not willing at that time and elected another lumpectomy procedure.

    0 Comments
  9. 9
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Lumpectomy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  10. 10
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    More cancer found without clean margins!!!

    Oh No

    More cancer found that was not picked up on any test, even the MRI. Again there was not clean margins so all of the cancer was not removed.

    0 Comments
  11. 11
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  12. 12
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Hair loss (alopecia)

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  13. 13
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Hot flashes

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  14. 14
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Mouth sores

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  15. 15
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Taste change/loss

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  16. 16
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Weight gain

    Side Effects

    20 lbs

    0 Comments
  17. 17
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    End of chemo

    Celebration

    still have to take Herceptin

    0 Comments
  18. 18
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Herceptin only for one year every three weeks

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  19. 19
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Tropical vacation

    Celebration

    Finished my hard chemo and took a nice vacation to recover. Now it is just Herceptin every three weeks.

    0 Comments
  20. 20
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Hormone therapy

    Drug or Chemo Therapy

    Fatigue, hot flashes and body odor. Also mood issues.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  21. 21
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Double Mastectomy

    Procedure or Surgery

    Off 3 weeks and had a hard time.

    Went as Expected: Neutral/NA
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  22. 22
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Expander placement

    Procedure or Surgery

    This part hurt bad. The fills were worse.

    Went as Expected: Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  23. 23
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Fills- Implant

    Procedure or Surgery

    The filling of the expanders was very painfull and caused me great anxiety. This had to be done every other week for months until the chest muscles were expanded enough for the implants to be placed. It was like having a brace on that cannot be removed no matter how much it is bothering you. It felt like no one could understand why I was having a hard time with the expansion but it feels to me that I cannot have been the only one. Perhaps because I am narrow built in the shoulders? Glad it is over.

    Went as Expected: Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  24. 24
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Breast Reconstruction (Implant)

    Procedure or Surgery

    Final implants

    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  25. 25
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Port removed

    Procedure or Surgery

    Removed

    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  26. 26
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Chemo brain

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  27. 27
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Fatigue (tiredness)

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  28. 28
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Mood changes

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  29. 29
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Nerve damage (peripheral neuropathy)

    Side Effects

    In feet. It only lasted a few months.

    0 Comments
  30. 30
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Other

    Side Effects

    Bad body odor that started with hormonal chemo

    0 Comments
  31. 31
    • Christa
    • Experience with Invasive (Infiltrating...
    about 5 years ago
    Christa's Avatar

    Hair is back

    Celebration

    This person has yet to add any details about this experience.

    0 Comments