RebeccaLynn25's Journey with Non-Hodgkin Lymphoma (NHL)

Patient: Non-Hodgkin Lymphoma (NHL)

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Female, Age: 36

  1. 1
    over 5 years ago
    RebeccaLynn25's Avatar

    Cough

    Side Effects

    I got sick back in May, and had this cough I couldn't get rid of. I went to two different doctors and had a couple different chest x-rays and my second doctor thought I had respiratory disease. He prescibed me an inhaler that I took for almost a month when I noticed a lump by my right collar bone and then one started coming up on my left collar bone. I thought because of where the lumps were, it was caused by the steroids in the inhaler. It made sense! They turned out to be swollen lymph nodes. So I went back to the doctor and they did another chest x-ray, took blood, and ran some tests. I received a call from the receptionist letting me know all the tests came back negative and they thought it had to do with the inhaler. I let her know I still had the swelling on my neck and the left side was getting bigger. She gave the message to the doctor and I get a call about a week later from the doctor. He said the chest x-ray was showing swollen lymph nodes on the left side of my body above my heart valves and that I needed to get more test run, to test for possible lymphoma.

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  2. 2
    over 5 years ago
    RebeccaLynn25's Avatar

    Shortness of breath

    Side Effects

    This person has yet to add any details about this experience.

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  3. 3
    over 5 years ago
    RebeccaLynn25's Avatar

    Diagnosed

    Oh No

    This person has yet to add any details about this experience.

    1 Comment
  4. 4
    over 5 years ago
    RebeccaLynn25's Avatar

    Decision Point

    I almost think it's the doctors that can deter anyone from their being able to heal because of their negativity!! I was so suprised by my diagnosis because I never once had a bad feeling. I've always known that I was going to be ok. I was annoyed with my doctor because when we went in there to get my diagnosis, she made the comment about needing possible further treatment, but me having to survive this one first?? Really, because never once had I thought about not surviving! I didn't do any research on what it could be or what it was because I didn't want anything to get in my head that would slow my healing. I told her, I wanted her to deal with the disease, and I would handle me. All I knew is that I have a 6 year old boy who I love more than anything in the world and I still had more living to do, and that I wasn't going to be one of those people who just laid down and died because a doctor told me they thought I only had so long to live!

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  5. 5
    over 5 years ago
    RebeccaLynn25's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I'm taking the R-CHOP and after my first treatment I was just really tired and achy after about the third day. It was hard realizing there were certain things I couldn't do. Simple things like going to the store, and needing a riding cart!! As ridiculous as I felt, I sure appreciated it after shopping for a little bit. I have a bit of a stressful job in customer service and I stopped doing anything stressful because stress is definitely not good for your body, and I took on light duty. I left work early a few days because I just didn't feel well. At home, nothing got done!! My house was such a mess! It drove me nuts, but I knew I needed to rest and not push myself. I was just too tired and wanted to lie down and rest. I had mouth sores and used baking soda, salt, and warm water to help soothe them and they went away in less than a week. Almost like clockwork, I would wake up at four am everyday because of the steroids. No matter what time I went to bed I was up as early as two am sometimes, but no later than four. Before I started treatment I would wake up at least once a night in pain and after the first treatment I just woke up, but at least I wasn't in pain! But I had a good week after about two weeks of feeling bad and an even better week after that. I just had so much more energy, and I felt so much better.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  6. 6
    about 5 years ago
    RebeccaLynn25's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Today is my third treatment and I'm dreading it! I'm really emotional today. Of course it's been a rough six months. We lost my father in law in July, I got diagnosed in September, my mother in law passed away the day before Thanksgiving, my boyfriend can't get his driver's license because he doesn't have a social security card and he can't get a social security card without a driver's license, my son hates school and I don't know how to help him, and now, we're having to get the car worked on! As if we're not broke already! I completely understand it could be so much worse, but really 2011jQuery15208733818213182924_1322834951385 Can we at least spread some of this crapp stuff out over a few years so we don't get hit all at once!

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  7. 7
    over 5 years ago
    RebeccaLynn25's Avatar

    Fatigue (tiredness)

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  8. 8
    over 5 years ago
    RebeccaLynn25's Avatar

    Hair loss (alopecia)

    Side Effects

    Losing my hair was probably one of the hardest things. My mom cut my hair, and cut about 16 inches off, which we donated to locks of love. I was ready to cut all that hair off, because I couldn't even comb it, but I wasn't quite ready to shave it. I would cry at the thought of losing my hair and to me, it was almost as traumatic as going through the chemo. But I prayed about it, so when it was time to cut it again, I was ok, and when it started falling out, I was ok and I didn't cry like I thought I would. I don't think about how I look without hair, there's nothing I can do about it. It is what it is. I have a couple of wigs that I wear and I wear makeup to feel pretty. I'm actually excited to see what color it comes back in and if it comes back in curlier or straight! :)

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  9. 9
    over 5 years ago
    RebeccaLynn25's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    The first time I had chemo, they used an IV because I didn't have a port and it took the nurses 12 sticks and 2 days to finish the first treatment! I've already had my second treatment and I still have a tough, red spot on my arm where the rituxin leaked in the tissue. I wasn't sure what to expect with the port. I had the twilight anethesia before, but this time, I felt sick for two days after. My neck was a little stiff, and I was sore from both spots and didn't realize that besides the little box that would be in my chest, there was going to be a tube that went up into my neck. So sleeping for the first several days was a little uncomfortable. But my second treatment with the port was a breeze!

    Went as Expected: Neutral/NA
    Minimal Recovery: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
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  10. 10
    over 5 years ago
    RebeccaLynn25's Avatar

    Cancer is shrinking

    Celebration

    After the first treatment, in a little over two weeks, I could already feel my collar bone!! Both sides have gone down significantly! :) No swollen lymph nodes under my arms either!

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  11. 11
    over 5 years ago
    RebeccaLynn25's Avatar

    Loss

    This person has yet to add any details about this experience.

    0 Comments
  12. 12
    over 5 years ago
    RebeccaLynn25's Avatar

    Other Care

    This person has yet to add any details about this experience.

    0 Comments