jsmoore's Journey with Ampullary Cancer

Patient: Pancreatic Cancer > Exocrine Tumor > Ampullary Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Female, Age: 71, Stage III

  1. 1
    • jsmoore
    • Experience with Ampullary Cancer
    over 4 years ago
    jsmoore's Avatar

    Cancer has spread/Metastasized

    Oh No

    This person has yet to add any details about this experience.

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  2. 2
    • jsmoore
    • Experience with Ampullary Cancer
    over 4 years ago
    jsmoore's Avatar

    Surgery

    Procedure or Surgery

    I had a Whipple procedure done by a fanastic surgeon at Kaiser, Oakland, named Dr. Kazanstev. Everything to do with the surgery and recovery went as anticipated.

    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • jsmoore
    • Experience with Ampullary Cancer
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    After my 1st round of chemo with gemcitabine, the CT scan showed metastases to the liver. Between the effects of the Whipple procedure and starting gemcitabine I felt nauseated, fatigued and had diarrhea for 3 months. Then the side effects resolved.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • jsmoore
    • Experience with Ampullary Cancer
    over 4 years ago
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    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  5. 5
    • jsmoore
    • Experience with Ampullary Cancer
    over 4 years ago
    jsmoore's Avatar

    Anemia (low red blood cell counts)

    Side Effects

    Gemcitabine lowered my blood count, but was immensely immproved by a pint of blood.

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  6. 6
    • jsmoore
    • Experience with Ampullary Cancer
    over 4 years ago
    jsmoore's Avatar

    Anemia (low red blood cell counts)

    Side Effects

    Gemcitabine caused anemia that was immensly improved, as was my fatigue and outlook, by a pint of blood. Folfox (oxycisplatin+leucovorin+5FU) has only caused mild, transient, neuropathy in my fingers and tongue if I eat or touch something too cold.

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  7. 7
    • jsmoore
    • Experience with Ampullary Cancer
    over 4 years ago
    jsmoore's Avatar

    Drug or Chemo Therapy

    First I had gemcitabine, but after 6 months of treatment 3 times a month, the CT showed metastaces to the liver. I've had 3 treatments of 5FU+leukovorin+oxaloplatin) 2 weeks apart and will see what the CT scan shows at the end of September, 2012.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  8. 8
    • jsmoore
    • Experience with Ampullary Cancer
    over 4 years ago
    jsmoore's Avatar

    whether to choose FOLFOX or CAPOX for my second line of chemotherapy

    Decision Point

    I chose FOLFOX, thinking that the 5FU targets the whole body rather than get Xeloda, which targets the liver.

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  9. 9
    • jsmoore
    • Experience with Ampullary Cancer
    over 4 years ago
    jsmoore's Avatar

    Cancer has spread/Metastasized

    Oh No

    AFter a Whipple procedure and 6 monthe of gemcitabine, the CT scan showed metastases to the liver.

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