Annebehymer's Journey with Ovarian and Fallopian Tube Cancer

Patient: Ovarian and Fallopian Tube Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Female, Age: 51

  1. 1
    over 5 years ago
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    Remission

    Celebration

    I went into remission by my third treatment that was something I did not think would happen so soon.

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  2. 2
    over 5 years ago
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    Taste change/loss

    Side Effects

    my side effects were chemo brian, constipation, fatigue, fluid in my abdomen and in my lungs, hair loss, nerve damage to my feet and starting in my finger tips, hot flashes, sores in my mouth, bone and joint pain, my skin changed a lot I feel like a snake at times, I have had some problems with swallowing, and I have really had the problem with the taste of food changing or lossing the ability to taste some things.

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  3. 3
    over 5 years ago
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    Clinical Trial

    I am in the Avastin trail and it seems to be working great I hit remission by my third treatment can't beat that :).

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  4. 4
    over 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Today started off at 4:45am I am going back into the hospital for my port and then I will be admitted into the hospital for chemo. So I arrive at 5:30am another day of hurry up and wait. I sat down in admitting for over an hour then was take up to radiology to have the port put in I got there at 7am. I sat there until 9:30am and was taken back to get the port it has already been a long day and it was just starting. I was told that I would be given medication that would let me sleep and that I would not remember what happen. Well let me tell you it did not work I was awake the whole time and remember every little bit of it. This day is not starting off good at all. Finally I got to go to my room my mom is waiting for me thank God she is walking this walk with me or I may not make it. Another friend has come to see me she and my mom are visiting with me when they come in for the first round of treatment. They start the chemo and we start just talking and visiting with the nurse and then within 10 minutes I knew something was wrong. The room got very small and all I could see we little lights floating around me I yell something is wrong the only thing I remember after that was my mom saying just breath. I yell back at her I can’t and for me that was it. Then I felt my mom whipping my head with a cold rag saying it’s ok breath. What I found out was after my first comment something is wrong I turned bright red and then turned purple because I had not breathing well. My mom said as soon as I started to crash the nurse unhooked the chemo and ran for more help. When I came back to myself they told me I had a reaction to the chemo and they were going to get my doctor on the phone it sounded like I was not going to be able to use this drug and to tell you the truth I did not want to after what had just happen. About an hour later they came back into my room and said they would start the drug again but at a lower dose and work their way up. Let me tell you I was scared and not very happy but I had to trust they knew what they were doing. They gave me something to help with my nerves and down the road we head again. At first I did well and did not get very nerves. As we got closer to the 167mm that I needed to be at the more scared I got but we made it and all went very well. They seemed to believe that the reaction was because it was just a shock to my body and my body just did not know how to respond.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  5. 5
    over 5 years ago
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    Abdominal hysterectomy

    Procedure or Surgery

    On June 24th at 11:30 AM I was scheduled for the surgery but before they can do the surgery I once again have to have my lungs drained. I was so scared because it hurts and for the brief moment when the lung claps just before reflating I feel like I can’t breathe this is something I was not looking forward to. So the lungs are drained and I was off to surgery my mom was there waiting with me and I really needed her strength. The time had come for them to move me into surgery I so wanted my mom with me but knew she could not come so the ride into the room was very lonely. I remember looking up at lights that would be used to see inside me and thinking Lord don’t let me die here I don’t want my mom to lose me this way. The next thing I remember was someone telling me I needed to wake up and stay awake so they could see if I could breathe on my own. The tube was still down my throat and a machine was breathing for me I noticed my hands were in restrains and I could not understand why. They told me they had to shut the machine down and see if you could breathe on my own before they could take to tube out all I wanted was the tube to be removed so my hands could be untie. At first all I did was gag on the tube the finally got me to calm down and concentrate on breathing and the tube then came out. As I laid there in ICU all I could think of was this was finally over all I have to worry about was getting better and back to work with my ladies. Then Doctor Poletis came in to say the surgery went well but while they were in there they found cancer. She stated they really thought the tumors would be nothing more than tumors and were really surprised to see the cancer she told me that I would need chemotherapy and that Doctor Monk would be by in the morning to talk with me more about what I was looking forward to all I could do was asks if I could call my mom who once again was my life line. They brought a phone into my room and once again I was crying out to my mom say I need you. When she arrived at the hospital I was still in ICU and waiting for a room to open for me on the six floor (the cancer floor). It was another sleepless night a night so dark I never thought the sun would shine for me again. My mom did not say much she just was there for me and I needed that more than anything. So into the obis I would go not sure if I would ever find my way out.

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  6. 6
    over 5 years ago
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    Diagnosed

    Oh No

    This all started June 4th in the ER of Arrowhead hospital. I went in because I had been coughing and sick for three months and no one could really make me feel better. They took a cat scan of my lungs and found fluid on both lungs so they put me into the hospital so I could get better. While there they started taking extra cat scan in my stomach I asked them I came in because of my lungs why are to x-raying my stomach? The doctor said he needs to know why my lungs are filling up with fluid. They found out that my ovaries were the size of footballs and I would be talking with the gyn doctor soon. Later that night while alone in my hospital room the doctor came in and before he reached my bed he stated his name and said you have ovarian cancer and have to have a hysterectomy tomorrow. I am sending you to St. Joe’s hospital tomorrow for the surgery and then he walked out of my room. It could have been noon and the sun in my room and it still would have been the darkest place on earth I called my mom and told her I needed her right now. After I hung up the doctor came back into my room and said this was not easy for you to hear but I don’t like to tip toe around things. He again left the room and the darkness closed in once again. When my mom got there I could not stop the tears she told me this is a win, win for you if you live it is good if you die it is good because you will be in heaven. I looked at my mom and said but I want to live. To understand that statement you have to know at 12 years old I had decided I would not grow old in this world and at 45 I was choosing life for the first time since I was 12 I wanted to live. Later that night as my mom and I sat in the darkness I call cancer one of the nurses came in to see if we needed anything and if I was alright. As we sat there and talked he said you know it has metastasized I did not think the room could get any darker but at that moment I was in the abyss and thought I would never find my way out.

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