allison's Journey with Invasive (Infiltrating) Ductal Carcin...

Survivor: Breast Cancer > Invasive (Infiltrating) Ductal Carcinoma

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: about 8 years ago, Female, Age: 45, Stage IV, HER2 Positive: No, ER Positive: Yes, PR Positive: Yes

  1. 1
    • allison
    • Experience with Invasive (Infiltrating...
    over 5 years ago
    allison's Avatar

    Diagnosed

    Oh No

    dr discovered 6 cm tumor in breast durring routine physcial mammo and biopsy revel 2 positive lymph nodes

    0 Comments
  2. 2
    • allison
    • Experience with Invasive (Infiltrating...
    over 5 years ago
    allison's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    4 a/c and 12 taxol. 22weeks chemo prior to surgery

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  3. 3
    • allison
    • Experience with Invasive (Infiltrating...
    over 5 years ago
    allison's Avatar

    Double Mastectomy

    Procedure or Surgery

    Recovery was a beast. got "cording" from the first few days. had to keep drains for three weeks. Had expanders placed and expanded until radiation started.

    Went as Expected: Neutral/NA
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  4. 4
    • allison
    • Experience with Invasive (Infiltrating...
    over 5 years ago
    allison's Avatar

    Diagnosed

    Oh No

    After surgery the pathology came back with 4 positive lymph nodes and two centimer tumor in breast. This is not what any of the scans had indicated. We were anticipating less than 1 cm tumor and no lymph nodes according to images. Persisted in asking why there were more nodes than when i was diagnosed, scans were done, and i was diagnosed with bone mets.

    0 Comments
  5. 5
    • allison
    • Experience with Invasive (Infiltrating...
    over 5 years ago
    allison's Avatar

    Drug or Chemo Therapy

    went on lupron to induce menapause. Shots no big deal. Hot flashes horrible. Given Effexor thelp with hot flashes. Worked great, an a very good anti-depressant too. Eventually had to give up Effexor because it gave me really tight muscles (myofacitis), pretty rare side effect.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  6. 6
    • allison
    • Experience with Invasive (Infiltrating...
    over 5 years ago
    allison's Avatar

    External radiation

    Radiation

    Felt like this was no big deal. Ithink I felt better than I had for months of chemo and surgery. Pain to have to go every day for months, but felt pretty good, and did not really have skin issues. radiation hrough the expanders was no big deal.

    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  7. 7
    • allison
    • Experience with Invasive (Infiltrating...
    over 5 years ago
    allison's Avatar

    Targeted therapy

    Drug or Chemo Therapy

    between november 09 and august 11 went through all the hormonal drugs. developed a resistance to each one after about 6 months. even though we had to kep changing thrapies, progression ws there, but fairly minimal until spring of 2011, when the bone mets went from about 10 different spots that were active or healed, to tiny spots all over my skeleton. switched at that point to tamoxifen, the last hormanal option. hormonals made it hard to lose weight gained in treatments, but really was able to live life uninterupted. no one would know I had mets if I did not tell them.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  8. 8
    • allison
    • Experience with Invasive (Infiltrating...
    over 5 years ago
    allison's Avatar

    Clinical Trial

    when I had to swith to oral chemo, after the hormaonls stopped working, I went on a trial of xeloda + a anti- veg f trial. The veg F made me swell, and I believe made my lymphedema worse. The xeloda made my hands and feet break out with red bumps uner my skin on my hands and feet to the point where I could not open doors or turn the ignition in the car, or walk without lots of pain. The 1st scan showed progress of disesase, but I was actally feeling pain relief by this time, so after long (3 hour) discussion with the dr I was taken off trial drug and changed the xeloda to 1week off one wwek on, will recheck scan in 6 weeks. The dr initially wanted me to move on to taxol (iv chemo again, and forvever) but after looking at the pictures decided that some areas were better, some worse, a mixed result. We knew the research drug was not agreeing with me due to swellig creating need for diuretics, and cheasing potassiums & liver functions

    0 Comments
  9. 9
    • allison
    • Experience with Invasive (Infiltrating...
    over 5 years ago
    allison's Avatar

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  10. 10
    • allison
    • Experience with Invasive (Infiltrating...
    over 5 years ago
    allison's Avatar

    Decision Point

    When the dr suggested going on Iv chemo forever, the oral drugs I had been on plus the reaserch drugs had been taking quite a tool already. I was starting to feel better for a week or two, but had recently gone through periods that I could not drive my kids around because I was afraid I would fall asllep. Couldn't eat. could not realy function to do anything for them. had a lot of pain. These things had slowly gotten better. Right before this scan that had new areas of progression, we had to take a break form the xeloda, and decrese the dose because of the hands and feet being so painful. durring the last couple days of the break, I had had a good weekend with my family and had been able to function and participate in their lives. The next monday we got bad news from the scans and I was blindsided. I had finally had a little taste of feeling okay again. I can not imagie going back on the even rougher chemo...with no end date. So the decision lies that after six more weeks will I decide to do the IV chemo if scan continue to get worse. Do I take the time I have not fighting so hard and be able to be and active mom, or trde that time in for maybe more time being a mom who is mostly in bed, but alive and avalible to at least hug them and talk to them. I have 3 kids. oldest is 10 year old girl. Middle is 8 year old boy, and youngest is a 6 year old girl with special needs. Never thought I would give up the fight....but never realized how worthwhile it is to participate in life until I couldn't........

    0 Comments
  11. 11
    • allison
    • Experience with Invasive (Infiltrating...
    over 5 years ago
    allison's Avatar

    External radiation

    Radiation

    in summer of 2011 had another round of radiation. This on e to my spine. Idea was to treat pain and maybe stop some progression, because my spine is pretty much covered. This was painless, and help with the pain. However, I lost a bunch of weight because the reflux and neasuea, could not eat without serious pain. happened to discover that percotte actually helped with this pain as much as the reflux meds and zofran. Did not get really bad untillast two weeks, but they were miserable, lasted about two weeks after complete. Helped pain a lot until august, when I had scan for a pain in my upper back that showd more progression up to the top of my spine. At that point had to go off hormonals. to do research trial, had to do a teo week wash with not trearment at all. I know hormonals were doing something, because after two weeks without I was more miserable than I had ever beeen, lots of pain in back and hips. very depressed. It took quite a while (6 weeks ) on new regime with anti depressants and ritilan to help keep me awake durring day to return me to a slower form of mormal than I had been all summer

    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
    0 Comments
  12. 12
    • allison
    • Experience with Invasive (Infiltrating...
    over 5 years ago
    allison's Avatar

    Celebration

    This person has yet to add any details about this experience.

    0 Comments