theresarae's Journey:

Survivor: Breast Cancer

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 8 years ago, Female, Age: 51, Stage IIB, HER2 Positive: No, ER Positive: Yes, PR Positive: Yes

  1. 1
    over 4 years ago
    theresarae's Avatar

    Axillary Lymph Node Dissection

    Procedure or Surgery

    The dissection was only part of the surgeries. By far this was the toughest to recover from. The drains were horrible. The never ending Lymph edema not enjoyable.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  2. 2
    over 4 years ago
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    Mastectomy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. 3
    over 4 years ago
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    Lumpectomy

    Procedure or Surgery

    There were two lumpectomies. Each time my Surgeon said there will be a 20% chance that we don't get clear margins but don't worry. Everything is going to be fine. Yes I'm fine, but if the surgeon would of listened to me and just done the Mastectomy right from the start I would of had 1 surgery instead of 3. Sorry for the negativity. Women just really need to be vocal and advocate for their own health.

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    1 Comment
  4. 4
    over 4 years ago
    theresarae's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Chemo was very easy to get through. I'm extremely thankful to God for giving me an easy road on this part of the adventure. Also, Kaiser was fantastic during this stage. They provided me with a bazillion different medicines to avoid any side effect that may have risen.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  5. 5
    over 4 years ago
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    External radiation

    Radiation

    This was one of the worst experiences of my life. Way worse than the chemo. I burned so badly that I had to take 10 days off from treatment. After using every possible cream or lotion, a Kaiser pharmacist found me a burn cream to put on the affected area. Of course my insurance wouldn't pay for it. The $80.00 for the tube of cream was worth every penny. What I didn't use I gave to another patient.

    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  6. 6
    over 4 years ago
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    Other Care

    This person has yet to add any details about this experience.

    0 Comments
  7. 7
    over 4 years ago
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    Decision Point

    This person has yet to add any details about this experience.

    0 Comments
  8. 8
    over 4 years ago
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    Lost loved one

    Loss

    I just recently lost a dear friend to breast cancer. She was diagnosed stage 4. She did everything possible to get rid of her cancer. She made it 5 years at a stage 4. I've never seen such a fighter.

    0 Comments
  9. 9
    over 4 years ago
    theresarae's Avatar

    Avastin for NOT Metastic Breast Cancer

    Clinical Trial

    This was a good experience in my Cancer journey. This started out as a blind study. After so many weeks when the blind was removed, we discovered I was on the real drug. I was very excited. This is a great drug I had the best Nurse at Kaiser that was with me the entire trial. Her name is Terri Sue. I think she is an Angel that lives here on earth. She was so caring, thoughtful and informative. My husband and I are so grateful for her. I almost made it through the entire trial. The trial was discontinued due to heart problems in patients. I only had about three weeks left. I still feel positive that I got a lot of the drug. The drug trial will follow me for 20 years. That also makes me feel good and positive. Oh, and the other good news..... my muga scans showed only a 5% deterioration in my valve flow. :) That is really good. Especially considering some patients hearts were harmed more.

    0 Comments
  10. 10
    over 4 years ago
    theresarae's Avatar

    Blood sugar, high (diabetes)

    Side Effects

    This has been a downfall in my health. Cancer causes stress, stress cause cancer, stress cause diabetes. I need to calm down so to keep it all away. Fat chance. Add in anti depressants and lorazepam.

    0 Comments
  11. 11
    over 4 years ago
    theresarae's Avatar

    Diagnosed

    Oh No

    One year after completing my breast cancer treatment, I'm diagnosed with melanoma on my leg. Now there are two things to keep track of.

    0 Comments
  12. 12
    over 4 years ago
    theresarae's Avatar

    Diagnosed

    Oh No

    December 0f 2011 diagnosed with Vin. This is severe dysplasia in the vulvar area. Sept. 2012 just got path report and now have clear margins. YAHOO!!! Unfortunately one more thing to watch for.

    0 Comments
  13. 13
    over 4 years ago
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    Other

    Celebration

    I just want to say that Cancer brought my family closer together. I wish that we didn't need Cancer to keep reminding us how short life can be. But for some reason we do. I pray that my family will get to a place where we can just accept and love each other without hostility and sarcasm.

    0 Comments
  14. 14
    11 months ago
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    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  15. 15
    over 4 years ago
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    Celebration

    This person has yet to add any details about this experience.

    0 Comments