Danuta's Journey with Invasive Lobular Carcinoma

Patient: Breast Cancer > Invasive Lobular Carcinoma

  1. 1
    • Danuta
    • Experience with Invasive Lobular Carcin...
    about 5 years ago
    Danuta's Avatar

    Diagnosed

    Oh No

    A newly retired and happy person as of 12/30/11 only to be diagnosed with lobular breast cancer on April 19, 2012. That was the darkest day of my 62 year old life. I went through all the testing and have it in both breasts but fortunately it did not spread. Since this typbness,e of cancer is fueled by estrogen one of the forms of treatment was to go on hormone therapy, namely Anastrozole. The purpose to shrink the tumors due to their size. I have not come to terms with a double mastectomy. I am hoping for a lumpectomy in both breasts, since it is four months that I am on the therapy and the tumors have shrunk considerably. October 30th I will along with my surgeon will make the decision as to which way to go. I will have to go through four infusions of chemotherapy as well as radiation therapy for six weeks as a precaution. The side effects of the therapy is wicked, numbness, hot flashes (unbelievably so) lack of appetite, energy, of which I always had a lot. I am still angry, upset and bitter, but manage to continue doing my normal everyday activites. I enjoy my grandchildren and even took my planned vacation in July with my immediate family. Please any sharing would give me great hope.

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  2. 2
    • Danuta
    • Experience with Invasive Lobular Carcin...
    about 5 years ago
    Danuta's Avatar

    Hormone therapy

    Drug or Chemo Therapy

    Everyday when I open my eyes in the mornining I don't know what to expect. Will this day be easier than the day before or am I in for it today. You just never know with the hormone therapy. The oncologist informed me that after taking it for six months you should reach a plateau and your side effects should level off and your body has accepted them, sometimes they reverse. My side effects were severe and I have one more month to the six month mark. If there is no change after this, they are thinking to change to another hormone, since I wil be on this for five years. I have the lobular breast cancer which is fueled by estrogen. I am still hoping for the lumpectomy since my tumors have shrank and when I have the surgery they will do the oncotype DX which give them my recurrene score and made a determination if I need the chemotherapy. While I had my biopsies I had a mammoprint which came back low risk and that is in my favor. If chemo is something that I do not have to do and still live a normal life, I choose not to do it. My oncologist tells me all I would need is four infusions every three weeks. This does not make me feel any better. I go for my MRI at the end of the month, then meet with the surgeon and at that point I know where I will be at. Here's another issue I have to concern myself with. I do not handle anesthesia well. So the shorter time I am under the better. Talk soon and good luck and prayers to all of you. Thank you for listening.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Agree
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  3. 3
    • Danuta
    • Experience with Invasive Lobular Carcin...
    about 5 years ago
    Danuta's Avatar

    MRI

    Other Care

    Just needed to share this procedure. This was my second one in six months and the only way I got through this was with valium. Taking it prior to and after the MRI. Only took two pills but it did help. It took an hour and it was extremely loud as you all know and the music does not drown it out. Also, with breast cancer they lay you on your belly extend your arms over your head and have an IV in one. THey put your face in a cushioned hole, of course this one was harder, since I have been on Arimidex and have the joint pain. I could not move after the test for at least five minutes, it was like I was frozen in that position. Took my time and made it out. It just frightens me that if I am so upset with test, how will handle the rest of my treatment. I found out in two weeks the results. They will show how much my tumors have shrunk and help my surgeon and myself make the decision on lumpectomy or mastectomy. I have decided not to dwell on it and enjoy everyday, for that day will come soon enough. Take care.

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  4. 4
    • Danuta
    • Experience with Invasive Lobular Carcin...
    almost 5 years ago
    Danuta's Avatar

    Lumpectomy or Mastectomy Both Breasts

    Decision Point

    I have been obsessing over this for the past two weeks, meet with the surgeon next week after my MRI. I am not prepared for this and don't seem to be getting any better about it. I never thought that I would be a lousy patient. My pain level was always pretty high but I find ever since I was diagnosed that I feel sorry for myself. I wish I had my old body back without the pain from the hormone meds. If anyone out there has any thoughts on this, I would welcome the help, God knows I need it. Take care to all.

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  5. 5
    • Danuta
    • Experience with Invasive Lobular Carcin...
    almost 5 years ago
    Danuta's Avatar

    lumpectomy or mastectomy

    Decision Point

    MRI revealed left breast tumor went from 7.0 cm to a tumor with no boundaries, and the right breast went down from 6.5 to 2.3 cm. Cancer surgeon and I made the choice of lumpectomy, which I asked if there was any urgency, since I wanted to wait until after the holidays. My surgeon was fine with it, and I will have a somewhat normal holiday with the family. For this I am extrememly grateful and feel like I have had a mini miracle. I am not out of the woods until they do the lumpectomy and find what type of cells are in there. But getting to this point was an extremely scary process, the unknown scares you, and I have had many of those days. I wish everyone a Happy Thanksgiving and a cancer free future.

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