jessicae25's Journey with Burkitt Lymphoma

Survivor: Non-Hodgkin Lymphoma (NHL) > B-Cell Lymphoma > Burkitt Lymphoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: about 6 years ago, Female, Age: 30

  1. 1
    over 4 years ago
    jessicae25's Avatar

    Misdiagnosed

    Oh No

    i went to the emergancy room 4 times. i went the 1st and 2nd time due to a severe back pain, i though it was kiddny stone,but all the doctors, two different doctors, did was due a urine test and told me that it was just a bladder infection. they gave me a antibodic and sent me home. two days after the second appointment my legs began to feel like they were asleep but the feeling wouldn't go away. so i went back again and the 3rd doctor finally did an xray and told me it was siadica, i'm sure thats not how its spelled, he then gave me some pain meds and sent me home again. two days later i lost almost all feelings in my legs except an extreme pain excpeciallly when touched and could barely stand much less walk, i beg my ex to take me again, he and his family who we were living with though i was just doing this to get attintion, so after i talked him into taking me for the last time i was seen by the 2nd doctor who had seen me already, and he finnaly gave me a ct scan and found three large tumors in my abdomen, one on my stomach, one on my overys and uterus, and the largest and deadliest was on my spinal cord and crushing my right kiddeny. then he told me that when he looked at the xray from 2 days before that the tumor were on there aswell and it was ignored. so after being told i called my ex and my mom i waited to be transpherd to a larger hospital to remove the tumor from my spine.

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  2. 2
    over 4 years ago
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    Surgery

    Procedure or Surgery

    i was rolled into surgery to remove the tumor, a port placed in. when it was done i wasn't able to lift my legs more than an inch off the bed and was in aggonizing pain that has remained to this day. and started chemo two days later

    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    over 4 years ago
    jessicae25's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    over 4 years ago
    jessicae25's Avatar

    Bleeding

    Side Effects

    chemo brain, confussion, numbness in fingers and hands, severe depression, eating dissorder, extreme fatigue, hair loss, low blood count, memory changes, vomiting, weight loss, are some of the symptoms i got

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  5. 5
    over 4 years ago
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    Birthday

    Celebration

    i actually turned 24 while i was in the rehabilitation center that i went to learn how to use my legs again, is what i did between chemo treatments for the first three months. i finished treatments back in october

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  6. 6
    over 4 years ago
    jessicae25's Avatar

    choice for a better life for me and my son

    Decision Point

    for the first three months while i was kept in the hospital my poor son was shuffled to three different people in his dads family. his dad would watch him in the morning when he got off work until his mom got off work then she would take him so his dad could some sleep before work, then se would watch him till my son's aunt would get him and watch him over night till his dad got off again and i know that wasn't easy for him. and it was hard for me because instead of getting support from my ex and his family, when ever he would call or visit all he would talk about was how tired he was from having to watch his son and why the doctor wasn't letting me go home, or he would tell me about his mom & her bf was tired of my son being over there every day because they weren't able to drink like they normally did, or that his sister didn't want to watch wade (my son) anymore because she wasn't able to go to bars and listen to her husband's band cause she couldn't leave him alone like she did her sons. they would not wait for two weeks for my sister to come down. his mom even had the nerve to call my sister asking why she wasn't comming sooner. (she had to buy a car that would make the trip from texas to pennsylvainia, where i was living at the time.) so after three months i told the doctor i needed too be released so i take care of my angel. and i was constintly emotionally, mentallly, and some would say physically abused when i was home between chemo treatments. he was always angery at me cause he would have to do the domestic chores like dishes, and taking out the trash, etc.. he would constantly well and start argueements about why i wasn't doing it. i mean i'm practialy paralyzed from the waist down, half the time i was lucky to een be able to get out of bed to feed my son. how was i supposed to take out the trash (he woud let the trash pile so high that it would take him almost half an hour to take it out. and i know this sounds like i was living like this on purpose but i am ashamed that it was even able to get like that, and i hate that i couldn't do anything about it. the finail thing that made up my mind to get me and my son away was when the last round of chemo reduced my blood count (all three counts) down to 1% and my doctor called me on a tuesday saying that if i didn't get a transfusion then i would start to bleed internally and possaibly to death and i told my ex he said that he wouldn't take me until he was on his week off wich was next tuesday cause there was no one to watch my son and i had to wait then he said that he had signed up for 3 days of overtime, and again said i would have towait for him to sleep for day, and then still he said that he wouldn't take me unless he could talk to my doctor, by that time it was saterday and my doctor didnt work weekends, he said that if the doctor didn't have time to call him then he didn't have time to take me, so i finnally snatched hi phone and called 911 to come get me. by that time my doctors were so scared for my and myson's life that they kept making excusses and giving me meds that would make me sick just to keep me in the hospital to try and save my life. thats when i decieded that he was willing to let me die. so my mom came up four days after i got out the hospital again and brought he and my son home. and i know this is alot to tell but there maybe some one that may be in the same situation that i was in. and they might need help or incuragement to get safe

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  7. 7
    over 4 years ago
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    physical rehabilataion

    Other Care

    for the first 3 months while i was in the hospital i would go to a physical rehab center were i met both there and in the hospital the best andmost caring people i have met. they helped me so much i wouldn't hae been here today if it wasn't for them. plus once i moved back to south carilina i had a in home rehab constructer that helped meso much that een though it was for a couple months so that i can now walk wth a walker or crutches. god bless them all

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