pancrease54's Journey with Pancreatic Cancer

Survivor: Pancreatic Cancer

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: almost 13 years ago, Male, Age: 64, Stage IB

  1. 1
    over 4 years ago
    pancrease54's Avatar

    Diagnosed

    Oh No

    We were always optimistic. I never "freaked out" so my wife stayed calm.

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  2. 2
    over 4 years ago
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    Whipple Procedure? Chemo afterwards?

    Decision Point

    Found a doctor that instilled 100% confidence.

    1 Comment
  3. 3
    over 4 years ago
    pancrease54's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Elected to have 6 months of 24/7 5FU as a prophylactic measure.

    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    over 4 years ago
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    Fatigue (tiredness)

    Side Effects

    Very tired near the end but worked anyway. I did get pretty bad ( and lasting ) neuropathy in hands/feet. I take Lyrica now and it helps.

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  5. 5
    over 4 years ago
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    Finished treatment

    Celebration

    Didn't lose much hair. What I lost came back was thicker and sort of curly.

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  6. 6
    over 4 years ago
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    Other

    Other Care

    Continued monthly visits to oncologist. Severe pain to this day from nerves cut during Whipple. Still on 1200MH morphine a day. Starting to impact work product.

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  7. 7
    over 4 years ago
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    CAM (Complementary and Alternative Medicine)

    Other Care

    Having pain pump installed September 11th -13th at Vanderbilt by my new pain management doctor. DEA was putting pressure on my oncologist to stop writing for oral meds. What was I supposed to do?

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  8. 8
    over 3 years ago
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    Finished treatment

    Celebration

    My onc called me last Friday, He had never done that. He always mailed my CA19-9 score. It was 8. He told me that after my July appointment he is going to "release me from clinic"!!! My 10 year journey is almost over! 115 round trips to Vanderbilt (600 miles) We put 70,000 miles on an F350 Super Duty Crew Cab so I could lie down in the backseat when necessary. Never give up, just keep going!

    3 Comments