Gururobb's Journey with Esophagus (Esophageal) Cancer

Patient: Esophagus (Esophageal) Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 6 years ago, Male, Age: 48, Stage IV

  1. 1
    • Gururobb
    • Experience with Esophagus (Esophageal...
    almost 6 years ago
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    Diagnosed

    Oh No

    I woke up Oct 16 2011 staring at paramedics sitting in a puddle of urine. Learned I had a seizure and was transported to a regional (small) emergency room where a CT of my brain was performed showing "4 or 5" tumors. Lifeflighted to University of Alabama Birmingham where further testing determined I have stage 4 esophageal cancer with tumors on my esophagus, liver, lymph-nodes, lungs and brain. This was the first and only indication anything was wrong. It was determined that my brain should be the first area treated and scheduling of that treatment was done with in days.

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  2. 2
    • Gururobb
    • Experience with Esophagus (Esophageal...
    almost 6 years ago
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    endoscopy

    Procedure or Surgery

    If they hadnt told me they done it I would have never known. Tumor of the esophagus looked at and biopsied. Adenocarcinoma. Yippy :-/

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  3. 3
    • Gururobb
    • Experience with Esophagus (Esophageal...
    almost 6 years ago
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    External radiation

    Radiation

    Oct 26 10 days after diagnosis I started radiation for the tumors in my brain. 5 of em total. Couldnt believe how unbelievably simple and painless the whole thing is. Hope the remaining 4 treatments to this part of my body go as easilly. You can find out more specifics on the type of treatment I had here..... http://www.radiologyinfo.org/en/info.cfm?pg=stereotactic EDIT....Nov 2 Brain Radiation Finished. Besides a slight (and I mean SLIGHT) Sunburn feeling to my scalp I wouldnt even know I had any treatment done. No side effects what so ever. Follow up in 4 weeks to MRI and establish the success fullness. Edit....May 13 Radiation was "mostly" a success. Follow up scans have showed of the tumors treated, None remain actively growing. The only thing remaining is scar tissue where the tumors once thrived. The same scans have shown 2 new tumors. They are small and the neurologist doesnt know if they where initially present and too small to see or if they are new but more radiation is recommended. I have also changed my opinion on the side effects of radiation. Its hard to place blame on one thing when one has 7+ tumors on the brain but I had better balance, eyesight, and brain functions before radiation. These do get better over time (something that wouldnt be true if the symptoms where related to my tumors) but there are side effects none the less.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Strongly Agree
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  4. 4
    • Gururobb
    • Experience with Esophagus (Esophageal...
    almost 6 years ago
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    Decision Point

    Life Change!! Time to know what I eat and how it effects my body. IM only 3 weeks post diagnosis so my research is still in its early stages but I have definitly come a long way. Right now Im focussing on no sugars, no modified foods and increasing my ph level. I also take mass amounts of vitamin c (10000 mg a day) and an iron supplement because early tests showed me slightly anemic. I find it hard to believe our bodies can't do wonders if we empower them. Heresy to hoping I can do that!!

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  5. 5
    • Gururobb
    • Experience with Esophagus (Esophageal...
    almost 6 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    After a month of begging for chemo I get a phonecall from the Oncologists saying a port and chemo treatment are scheduled for you at 6:30 am. After explaining a drug change due to short supplies I explain my recent hesitations to even starting treatment ( i still dont have symptoms after being diagnosed with stage 4) I tell the Oncologists we will be there. Drove the three hours to the hospital. Had an outpatient surgery performed for the port and headed to have my chemo. Still not knowing Id even go through with it. Continued the discussion with the wife and went ahead and sat through two of the nicest ladies youd ever meet pump poison into my chest. 24 hours later no real side effects. *edit* Back pain and a bald spot developed on the second day. Also a touch of neurothapy when exposed to temps below 60 or so. The back pain is horrible but Im assuming I`ll complain enough to get some pain meds next go round.

    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
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  6. 6
    • Gururobb
    • Experience with Esophagus (Esophageal...
    over 5 years ago
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    Decision Point

    Regrouping. I have had limited success with one chemo regime. No success with another. After 6 months of "treatment" I am taking some time off to gauge the cancer growth on my own. I had a Oncologist tell me if it where up to him, "as long as you can walk in the room" we will continue to give you chemo. Ya know doc, I was a LOT "healthier" before you started. Im not saying I will never receive chemo or radiation again, but I am saying its time to slow down and treat myself more responsibly the the Dr`s have been so far. At the very least I would like to feel like im dying before being treated like it.

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