Courage's Journey with High-Grade Astrocytoma (also called G...

Survivor: Brain and Spinal Cord Tumors in Adults > Glioma > Astrocytoma > High-Grade Astrocytoma (also called Glioblastoma)

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 7 years ago, Female, Age: 56

  1. 1
    • Courage
    • Experience with High-Grade Astrocytoma...
    over 4 years ago
    Courage's Avatar

    Primary care physician

    Other Care

    PCP did not take my symptoms seriously enough and did not take action soon enough.

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  2. 2
    • Courage
    • Experience with High-Grade Astrocytoma...
    over 4 years ago
    Courage's Avatar

    Spinal cord biopsy

    Procedure or Surgery

    After surgery I was paralyzed from the waist down due to a "spinal stroke", a result of surgery. I was told it was due to a bleed in the spinal cord.

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • Courage
    • Experience with High-Grade Astrocytoma...
    over 4 years ago
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    Diagnosed

    Oh No

    Four days after surgery I got the diagnosis, Glioblastoma multiform L1, stage 4 and that I was looking at 6-12 mos tops. Total shock!

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  4. 4
    • Courage
    • Experience with High-Grade Astrocytoma...
    over 4 years ago
  5. 5
    • Courage
    • Experience with High-Grade Astrocytoma...
    over 4 years ago
    Courage's Avatar

    Rehab Hospital - Physical Therapy

    Other Care

    i can't say enough good things about the people at Edwin Shaw Rehab Hospital. They helped me learn how to do everything I needed to know how to become independent again. I was there approx. 2-1/2 weeks.

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  6. 6
    • Courage
    • Experience with High-Grade Astrocytoma...
    over 4 years ago
    Courage's Avatar

    External radiation

    Radiation

    If I remember correctly, I had radiation every weekday for 6 and a half weeks. The side effects came much later as the radiation went thru my stomach to the L1-T12 region of my spinal cord where the glioblastoma was located. I have had a few episodes of heartburn since. I do remember feeling very tired during the treatment, but i was also doing physical therapy 3 days a week & taking Temodar, an oral chemo drug. All these things contributed to my being so tired.

    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Neutral/NA
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