jerryb43050's Journey with Cancer of Unknown Primary

Spouse/Partner: Cancer of Unknown Primary

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 6 years ago, Female, Age: 60

  1. 1
    over 5 years ago
    jerryb43050's Avatar

    Diagnosed

    Oh No

    My wife had been feeling "bloated" for about a month with pains in her abdomen and back. Thinking it was possibly a gall bladder issue, went to the doctor only to be told that they found a 9 cm tumor on her liver along with lots of fluid in her abdomen that contained cancerous cells. This was in late June of this year. Went to the James Cancer Institute at The Ohio State Medical Center where they confirmed the diagnosis and performed more tests including PET scans, colonoscopy, etc. to try to locate the source of the cancer (we were told that liver tumors rarely are from the liver but are usually a result of other cancerous cells getting into the liver). Long story short, they were unable to locate the source of the cancer. She is currently being receiving chemo treatments from a great local oncologist (we live a little over an hour from the James and didn't feel that she could handle that drive time), She started out with cisplatin/gemzar regime but couldn't handle that well, becoming hospitalized with extreme dehydration. The next treatment was carboplatin/gemzar which she handled better, but still wound up in the hospital with kidney stones and severe UTI this time (doctor thinks her kidneys took a hit from the chemo). Her last two weekly treatments have been carboplatin/taxol, and she seems to be handling this combination much better. Lots of nausea, but she's able to control herself better and is actually getting around a little bit on her own.

    0 Comments
  2. 2
    over 5 years ago
    jerryb43050's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Carboplatin/taxol regime. Nausea and severe fatigue appear to be the main side effects at this time. She is almost bed-ridden, only limited movement (going from bedroom to living room) before she gets tired.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  3. 3
    over 5 years ago
    jerryb43050's Avatar

    Anemia (low red blood cell counts)

    Side Effects

    Also fatigue, bladder problems, high blood pressure...

    0 Comments
  4. 4
    over 5 years ago
    jerryb43050's Avatar

    Money

    Oh No

    Sigh. My wife has been approved for disability, but it's only 1/4 of what she was bringing home while working, it doesn't start until February, and she's not eligible for MediCare for two years after that. Her employer has been pretty good through all this, they've been paying for her share of health insurance but will be stopping that at the end of the month. At this point that leaves us with no health insurance for her, we're not eligible for any of the state or Federal programs that I've been able to find (what a maze, even with help!). I've been working from home as much as possible to stay with her, but that's limiting my income and we just can't afford to go private insurance. Going to have to make some very tough decisions here - very quickly.

    0 Comments
  5. 5
    over 5 years ago
    jerryb43050's Avatar

    Lost loved one

    Loss

    Dianne passed away last Tuesday, December 6th, at 7:00 am. I was fortunate enough to be the only one in the room with her at the time. I was sitting on the side of the bed, holding her hand, when she took her final breaths. Her passing was very peaceful, and she was not in any pain.

    0 Comments