Mercer's Journey with Low-Grade, Osteosarcoma
Caregiver: Bone Cancer > Osteosarcoma (Also called Osteogenic Sarcoma) > Low-Grade
Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 11 years ago, Male, Age: 36, Stage IB
Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 11 years ago, Male, Age: 36, Stage IB
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Mercer
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Experience with
Low-Grade, Osteosarcoma
over 8 years agoDiagnosed
Oh No
My son was in summer school out of state & experienced severe pain in his knee. He went to an ER. Luckily, they took an x ray & called him the following day to come in for a CT. We flew him home the next day for CT here at home. He had a biopsy. I will never forget watching silently as he took the phone call from his Dr. The biopsy results.... life for him was going to change. Within 2 weeks my son was beginning chemo therapy.
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Mercer
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Experience with
Low-Grade, Osteosarcoma
over 8 years agoChemotherapy
Drug or Chemo Therapy
It was gut wrenching. He was so sick. It broke my heart. He didn't complain. He was so brave.
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Mercer
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Experience with
Low-Grade, Osteosarcoma
over 8 years agoNausea/Vomiting
Side Effects
I could list half of these. Did I mention how sick he was?
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Mercer
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Experience with
Low-Grade, Osteosarcoma
over 8 years agoChemotherapy
Drug or Chemo Therapy
Same treatment again. 4 rounds. He was very sick again. 9 months had now gone by.
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Mercer
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Experience with
Low-Grade, Osteosarcoma
over 8 years agoSurgery
Procedure or Surgery
He had a 9 hour surgery. We did get good news. The chemo had worked. They removed the tumor in his left femur & placed an allograph with pins and screws. He never complained. He was in alot of pain. I was blessed to be the one to take care of my son. I am so proud of him.
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Mercer
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Experience with
Low-Grade, Osteosarcoma
over 8 years agoMy son did not want to go thru the 4th round. He believes the chemo damages your heart . This treatment has stayed the same for 60 years. I pleaded for him to go to the Mayo for a second opinion. They recommended one more round. He said no and went
Decision Point
This person has yet to add any details about this experience.
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Mercer
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Experience with
Low-Grade, Osteosarcoma
over 8 years agoFollow up scans
Other Care
It has been 2 years cancer free:) He is engaged to be married. Here is this Mothers challenge. His last scan was supposed to be in May. Should be every 6 months. He has had excuse after excuse. He has health care. I have pleaded, begged, cried, ratted him out to his fiance' . This is serious. Screening is important. It can spread to his lungs. I don't know how to let go? He is 27 but he is still my boy. It breaks my heart. I worry and feel alone. Someone please tell me how to let go and just let him make his own decisions.