Mercer's Journey with Low-Grade, Osteosarcoma
Caregiver: Bone Cancer > Osteosarcoma (Also called Osteogenic Sarcoma) > Low-Grade
Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 11 years ago, Male, Age: 36, Stage IB
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Experience Icon Descriptions
Procedure: Drag this icon to show a procedure.
Radiation: Drag this icon to show a specific radiation therapy experience.
Drug Therapy: Drag this icon to show a specific drug therapy experience.
Clinical Trial: Drag this icon to show a clinical trial experience.
Side Effect: Drag this icon to show experience with a specific side effect.
Oh No: Drag this icon to show when something bad happened (e.g., cancer’s back, lost job).
Celebration: Drag this icon to show when something good happened (e.g., last treatment, hair is back).
Loss: Drag this icon to show a time of loss (e.g., lost hair, lost loved one).
Decision Point: Drag this icon to show a time when you had to make a tough decision.
Other Care: Draft this icon to show a time when you needed other care (e.g., hospice, psychotherapy).
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Diagnosed
Oh No
My son was in summer school out of state & experienced severe pain in his knee. He went to an ER. Luckily, they took an x ray & called him the following day to come in for a CT. We flew him home the next day for CT here at home. He had a biopsy. I will never forget watching silently as he took the phone call from his Dr. The biopsy results.... life for him was going to change. Within 2 weeks my son was beginning chemo therapy.
Chemotherapy
Drug or Chemo Therapy
It was gut wrenching. He was so sick. It broke my heart. He didn't complain. He was so brave.
Nausea/Vomiting
Side Effects
I could list half of these. Did I mention how sick he was?
Chemotherapy
Drug or Chemo Therapy
Same treatment again. 4 rounds. He was very sick again. 9 months had now gone by.
Surgery
Procedure or Surgery
He had a 9 hour surgery. We did get good news. The chemo had worked. They removed the tumor in his left femur & placed an allograph with pins and screws. He never complained. He was in alot of pain. I was blessed to be the one to take care of my son. I am so proud of him.
My son did not want to go thru the 4th round. He believes the chemo damages your heart . This treatment has stayed the same for 60 years. I pleaded for him to go to the Mayo for a second opinion. They recommended one more round. He said no and went
Decision Point
This person has yet to add any details about this experience.
Follow up scans
Other Care
It has been 2 years cancer free:) He is engaged to be married. Here is this Mothers challenge. His last scan was supposed to be in May. Should be every 6 months. He has had excuse after excuse. He has health care. I have pleaded, begged, cried, ratted him out to his fiance' . This is serious. Screening is important. It can spread to his lungs. I don't know how to let go? He is 27 but he is still my boy. It breaks my heart. I worry and feel alone. Someone please tell me how to let go and just let him make his own decisions.