Mercer's Journey with Low-Grade, Osteosarcoma

Caregiver: Bone Cancer > Osteosarcoma (Also called Osteogenic Sarcoma) > Low-Grade

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 8 years ago, Male, Age: 32, Stage IB

  1. 1
    • Mercer
    • Experience with Low-Grade, Osteosarcoma
    about 5 years ago
    Mercer's Avatar

    Diagnosed

    Oh No

    My son was in summer school out of state & experienced severe pain in his knee. He went to an ER. Luckily, they took an x ray & called him the following day to come in for a CT. We flew him home the next day for CT here at home. He had a biopsy. I will never forget watching silently as he took the phone call from his Dr. The biopsy results.... life for him was going to change. Within 2 weeks my son was beginning chemo therapy.

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  2. 2
    • Mercer
    • Experience with Low-Grade, Osteosarcoma
    about 5 years ago
    Mercer's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    It was gut wrenching. He was so sick. It broke my heart. He didn't complain. He was so brave.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • Mercer
    • Experience with Low-Grade, Osteosarcoma
    about 5 years ago
    Mercer's Avatar

    Nausea/Vomiting

    Side Effects

    I could list half of these. Did I mention how sick he was?

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  4. 4
    • Mercer
    • Experience with Low-Grade, Osteosarcoma
    about 5 years ago
    Mercer's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Same treatment again. 4 rounds. He was very sick again. 9 months had now gone by.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  5. 5
    • Mercer
    • Experience with Low-Grade, Osteosarcoma
    about 5 years ago
    Mercer's Avatar

    Surgery

    Procedure or Surgery

    He had a 9 hour surgery. We did get good news. The chemo had worked. They removed the tumor in his left femur & placed an allograph with pins and screws. He never complained. He was in alot of pain. I was blessed to be the one to take care of my son. I am so proud of him.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  6. 6
    • Mercer
    • Experience with Low-Grade, Osteosarcoma
    about 5 years ago
  7. 7
    • Mercer
    • Experience with Low-Grade, Osteosarcoma
    about 5 years ago
    Mercer's Avatar

    Follow up scans

    Other Care

    It has been 2 years cancer free:) He is engaged to be married. Here is this Mothers challenge. His last scan was supposed to be in May. Should be every 6 months. He has had excuse after excuse. He has health care. I have pleaded, begged, cried, ratted him out to his fiance' . This is serious. Screening is important. It can spread to his lungs. I don't know how to let go? He is 27 but he is still my boy. It breaks my heart. I worry and feel alone. Someone please tell me how to let go and just let him make his own decisions.

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