LauraJo's Journey with Adenocarcinoma, Colorectal Cancer

Survivor: Colorectal (Colon) Cancer > Adenocarcinoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 6 years ago, Female, Age: 56, KRAS mutation positive: Don't Know, BRAF mutation positive: Don't Know, Stage IIIA

  1. 1
    • LauraJo
    • Experience with Adenocarcinoma, Colore...
    over 4 years ago
    LauraJo's Avatar

    Diagnosed with rectal cancer

    Oh No

    During a routine gyno exam, my doctor said, there's something there...we want to look at. 4 days & 2 doctors later....well, it's cancer. Still don't know how this happened...there isn't ANY cancer in my family

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  2. 2
    • LauraJo
    • Experience with Adenocarcinoma, Colore...
    over 4 years ago
    LauraJo's Avatar

    External radiation

    Radiation

    6 weeks of daily radiation with neoadjuvant chemo pre-op to shrink tumor prior to surgery. Not that bad at all, until the last week or so..really just tired. The last week, however, every time I peed, it was like cut glass...so painful. My poor oncologist tried everything, but nothing really helped.

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • LauraJo
    • Experience with Adenocarcinoma, Colore...
    over 4 years ago
    LauraJo's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    6 weeks of 5-FU chemo pre-op along with daily radiation to shrink tumor prior to surgery. Had to lug a chemo pack around. Wish it could be smaller...I keep hitting/catching it on things. However, not all that bad, considering my alternative

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  4. 4
    • LauraJo
    • Experience with Adenocarcinoma, Colore...
    about 4 years ago
    LauraJo's Avatar

    Finished treatment

    Celebration

    Done with pre-op treatment & tumor is gone - complete response. Just have to get back on my feet & gain some weight back before surgery in 8 weeks. I lost 50 lbs between chemo & radiation. Not that I'm complaining about that !

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  5. 5
    • LauraJo
    • Experience with Adenocarcinoma, Colore...
    over 4 years ago
    LauraJo's Avatar

    Spots in lungs

    Oh No

    Pre-op x-ray shows 12 spots in your lungs & we aren't sure what they are, and we can't do your surgery until we know what it is" I had to have surgical lung biopsy and had to do several weeks of waiting & fuming while waiting for infectious diseases report before we could go ahead with resection surgery. Spots turned out to be mini-clots from medi-port.

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  6. 6
    • LauraJo
    • Experience with Adenocarcinoma, Colore...
    over 4 years ago
    LauraJo's Avatar

    Surgery

    Procedure or Surgery

    Had lung biopsy to rule out cancer spots in my lungs. This was, in retrospect, worse than the resection surgery. The doctor's staff delayed the procedure for a week because they didn't understand what was to be done - I ask you!, and the actual day of surgery, he was called out to an emergency, and my 8:00 procedure wasn't done until 4:00. Recovery was ok, except that the nurse kept trying to make me use the pain button, when I didn't need it, and they forgot to take my stitches out before I was sent home.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  7. 7
    • LauraJo
    • Experience with Adenocarcinoma, Colore...
    over 4 years ago
    LauraJo's Avatar

    Mediport wore through my skin right before I was scheduled for surgery

    Oh No

    It came through my skin the day before my big surgery, but fortunately there wasn't any kind of infection, so we didn't have to delay surgery. However, when they removed it, there wasn't enough skin to close the incision, so they had to pull & stretch the skin over, and now I had a ugly ugly scar that will probably never fill in :(

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  8. 8
    • LauraJo
    • Experience with Adenocarcinoma, Colore...
    over 4 years ago
    LauraJo's Avatar

    Removal of rectal tumor

    Procedure or Surgery

    Surgery to remove rectal tumor with temporary ileostomy, creation of j-pouch. Can't say enough good things about my surgeon, Dr. Marc Brozovich, or the staff at UPMC Passavant. And I was in the just opened new wing of the hospital. I have been in hotels that were not as nice. The ileostomy took some getting used to, but was managable.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
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  9. 9
    • LauraJo
    • Experience with Adenocarcinoma, Colore...
    over 4 years ago
    LauraJo's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    16 weeks of leucuvorin with oxiliplatin (Folfox). At surgery, although my tumor had completly disappeared, 2 of the 18 lymph nodes had cancer, so I was staged at TIIIA. So let's be aggressive, so we only had to do this once. It made for a long summer, but really did'nt cause any problems, except that I would always vomit on Thursday after getting my chemo the previous Friday. Never figured that timing out, just took my Compazine.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  10. 10
    • LauraJo
    • Experience with Adenocarcinoma, Colore...
    over 4 years ago
    LauraJo's Avatar

    Takedown of temporary ileostomy

    Procedure or Surgery

    Yay! No more bag! Although getting my system to "wake up" seemed to take forever. I have never been so happy to poop in my entire life. Learning to work with the j-pouch has taken some work, but is certainly better than a permanant bag.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  11. 11
    • LauraJo
    • Experience with Adenocarcinoma, Colore...
    over 4 years ago
    LauraJo's Avatar

    Quarterly scans this week

    Other Care

    Does this ever become not nerve-wracking??

    1 Comment