LisaLathrop's Journey:

Survivor: Leukemia > Acute Myeloid Leukemia (AML) > Undifferentiated AML (M0)

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 8 years ago, Female, Age: 53

  1. 1
    over 4 years ago
    LisaLathrop's Avatar

    It finally hit ME....after 4 deaths and 2 diagnosises in my maternal line

    Oh No

    My Grandmother and her 3 siblings all passed away from Cancer (of different types). One cousin had a double mastectomy. My mother was 4 months into her battle with lung cancer when I was diagnosed. And 2 years after my diagnosis, my sister was diagnosed with basal cell carcinoma.

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  2. 2
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    I went through all colors of the rainbow chemotherapy. Before and after my Bone Marrow Transplant. I only got physically sick from the chemo once. Overall, the actual treatments were tolerable. It was the after effects of low energy, fatigue, dry mouth, etc. that were difficult for me and some of which still effect me today.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    over 4 years ago
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    Medicine for low white blood cell count

    Drug or Chemo Therapy

    Neopogen shots were painful...but not as much for me as for my BMT donor and sister Amy. Her donation was very painful with apharesis, neupogen, chills, etc.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
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  4. 4
    over 4 years ago
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    Nexavar drug

    Clinical Trial

    Nexavar which is approved for liver/kidney transplants but in clinical trials for Leukemia / BMT patients. I am told I will have to take this drug for the rest of my life. It blocks the FLT3 inhibitor which allowed my leukemia to return after the first BMT transplant. Initially I was on 4 pills 2x a day....talk about ripping up your stomach! We cut back slowly to 1 tab a day...and I now take 2 which is more tolerable and gives me "peace of mind" that it is doing it's job and not letting the Leukemia get back in.

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  5. 5
    over 4 years ago
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    Chemo brain

    Side Effects

    Chemo brain sucked!! I once put all my am meds into my bowl of cereal instead of in my mouth. And I could never dispense my own meds....to the rescue came a pill box with 3 compartments for each day. My husband dispensed them for me and it was about 3 years until I could do it myself.

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  6. 6
    over 4 years ago
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    Allergic reaction

    Side Effects

    During my recovery, I became ill with bronchitis...which is a "new norm" for me. The first time I came down with it I was prescribed Amoxicillin and broke out in a rash from hairline to toenails. My sister (donor) was allergic to Amoxicillin and so I inherited the allergy from her blood. Fun!

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  7. 7
    over 4 years ago
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    How I give back...

    Celebration

    If you or someone you know is a cancer survivor or still in treatment, I have created a website that is chock full of support links, health & wellness products I love, and art products that say "I'm proud to be a survivor!" Check it out....and visit often. I am adding new links every day. www.cancerkaleidoscope.com

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  8. 8
    over 4 years ago
    LisaLathrop's Avatar

    Fatigue (tiredness)

    Side Effects

    For the first 2 years after my treatment I dealt with extreme fatigue. I would get up in the morning have some breakfast and sit in my recliner with a blanket to watch the Today show. Within 15 minutes I'd be asleep again. What gives??? I just had a good 8 hours of sleep but yet I couldn't keep my eyes open. Come to find out after I had drowned my sorrows (loss of my Mom, couldn't work, all alone during the day, depression over moving to a new area, etc.) in food, I had gained 55 lbs. and now had sleep apnea, too.

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