KimberlyD's Journey with Nodular lymphocyte predominant Hodgki...

Survivor: Hodgkin Disease > Nodular lymphocyte predominant Hodgkin disease

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 8 years ago, Female, Age: 30, Stage IV

  1. 1
    • KimberlyD
    • Experience with Nodular lymphocyte p...
    about 5 years ago
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    Misdiagnosed

    Oh No

    For nearly 1.5 years I had been feeling quite under the weather, losing 20 lbs in a 4 week time-frame without trying, suffering from extreme back pain/lower back muscle spasams, sever reactions to the consumption of alcohol (lower back pain/spasams) and a swolled lymph node in the neck. After MULTIPLE misdiagnoses (I along with my family continued the fight as we KNEW something was terribly wrong) and an un-necessary surgery to remove my gullbladder, I was finally diagnosed by the Mayo Clinic with Stage IV Hodgkin's Lymphoma.

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  2. 2
    • KimberlyD
    • Experience with Nodular lymphocyte p...
    about 5 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    My port was one of the best and worst things about my diagnosis/treament. I found it much easier to take chemotheraphy through the port rather than the arm vein. My port was implanted on a Wednesday and I began chemo the following day which was rather painful on a fresh wound. My port scar is now a proud symbol of my battle against and win over lymphoma.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • KimberlyD
    • Experience with Nodular lymphocyte p...
    about 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    I was receiving chemotherapy during the H1N1 outbreak. I was receiving an extremly high dosage along with side medication which completly wiped out the immune system. Due to the compromised immune system, I was nearly home bound during this time. I was unable to see most family/friends without them being in complete good health. Airborne, hand sanitizers, gloves and masks were my close friends if I dared to venture into public settings. The actual ABVD treatment had it's side effects, such as the loss of my beautiful, fun hair, but I was extremly lucky to not get very sick from treatments, until the end. My last three treatments were terrible. I would get very cold towards the last hour then go into full body shakes for up to 3 hours post treatment. This would completly exhast the body. I suffered from extreme fatigue and weight loss during the first treatment, and was put on steroids to combat these side effects. Which lead to a sleep aid to combat the first pill. So on and so forth did the cycle continue.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • KimberlyD
    • Experience with Nodular lymphocyte p...
    about 5 years ago
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    Hair loss (alopecia)

    Side Effects

    I experienced quite a few side effects such as: Hair loss, weight loss followed by weight gain, chemo brain, thrush (mouth sores), taste change, extreme fatigue, insomnia, fever/flu-like symptoms, low white blood count, extreme hot flashes, extreme sweating, moodiness.

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  5. 5
    • KimberlyD
    • Experience with Nodular lymphocyte p...
    about 5 years ago
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    Remission

    Celebration

    News of my remission came in January 2010. It was the best day of my life!!! What an accomplishment had been made by not only my body, but my family, friends and dr. staff!!

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  6. 6
    • KimberlyD
    • Experience with Nodular lymphocyte p...
    about 5 years ago
    KimberlyD's Avatar

    Atypical Idiopathic thrombocytopenic purpura Post Chemo

    Other Care

    Nearly 2 years post chemo I was diagnosed with low platelet count. The platelet drop became so severe I was put on steroids and endured a transfusion to combat the Atypical ITP (Idiopathic thrombocytopenic purpura).

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