withGodshelp's Journey:

Survivor: Non-Hodgkin Lymphoma (NHL) > B-Cell Lymphoma > Follicular Lymphoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 7 years ago, Female, Age: 50, Stage III

  1. 1
    over 4 years ago
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    Surgery

    Procedure or Surgery

    My Dr. thought I had a cyst in my groin, had surgery to remove it. When he took it out he realized it was scalier. Had to send it off to determine what it was, it came back cancer!

    Went as Expected: Strongly Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  2. 2
    over 4 years ago
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    Money

    Oh No

    The first thing I thought was "oh XXX I am gona die and who's gona raise my 17yr old daughter" I have lost my Mom to cancer 10yrs ago, I lost my oldest sister 6yrs ago to bone cancer, she suffered so bad. I am self employed at a hair salon and if ya dont work you dont get paid.

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  3. 3
    over 4 years ago
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    External radiation

    Radiation

    That was so scarey! I had 30 treatments, I would have it done in the afternoon, so I could work in the mornings. I work in a beauty shop and could not go back in after my treatment.

    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    I had another PET scan and another spot came up under my arm, so now I am stage 3, I decided to start Rituxan(chemo) I have to take it for 2 years, I am now on my once every 8 weeks. It makes my immune system fight the cancer there for I cannot fight off anything else, so I get sick alot. Working in the public is hard, people dont care if they are sick, when they wont there hair done they will come any way, I have lost some customers because I told them they could not come because they were sick and they got mad.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    1 Comment
  5. 5
    over 4 years ago
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    Bone thinning (osteoporosis)

    Side Effects

    I burned, now my hips hurt all the time, I had a PET scan and they found 2 more tumors on the same side and 3 more on the other side, the radiation killed my ovary's so it threw me into early menopause, OMG! I am soooo freakn HOT!! My oncologist does not wont me to take hormones.

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  6. 6
    over 4 years ago
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    Lost loved one

    Loss

    I lost my awesome Mom( Aug.11,2002) 10 years ago to small cell melanoma. She died at home talking to each of us all the way to the end, her last words were to my dad " I LOVE YOU!" they were married in 1949. Four years later my oldest sister died of bone cancer, she was in Hospice Haven about 6months, unlike my Mom, she was in HORRIBLE PAIN, near the end we could not even touch her, it hurt and she would yell out, OMG I still dream about it, I never thought in my life that I would pray for some one to die, and I would of never guessed I would have for my sister. She died(Aug.142006), four years and two days after my Mom, we were so close, a single day never goes by with out me thinking about both of them. My daughter was the 1st grandchild in my family in 25 years, she was 7 when my mom passed and 11 when my sister passed. Both of them loved my daughter more than words could say. She will graduate in 2013 and that is going to be tough on me, I tell her that both of them are watching over her and I, they are our guarding angles.

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  7. 7
    over 4 years ago
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    Other Care

    This person has yet to add any details about this experience.

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  8. 8
    over 4 years ago
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    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  9. 9
    about 4 years ago
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    rituxan

    Drug or Chemo Therapy

    I am having alot of sinus infections, they seem to be worse the week after my Rituxan treatment.Does anyone else have sinus problems? I also get sick so easy, like colds, headaches, stomach. My last scan was good but still have another year to year and half of Rituxan.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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