KevinSnyder's Journey with Acute Lymphocytic Leukemia (ALL)

Survivor: Leukemia > Acute Lymphocytic Leukemia (ALL)

Patient Info: Finished active treatment more than 5 years ago, Diagnosed: almost 36 years ago, Male, Age: 49

  1. 1
    over 4 years ago
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    Diagnosed

    Oh No

    I was a very active 12-year old, playing baseball, soccer, hockey and other sports since age 7. All at about the same time, I began to get very tired early in the afternoons. I'd come home from school and go right to sleep. I developed a tremendous amount of bruises, which at first my family and I thought were related to all the sports, but soon after my right knee had excruciating pain. A visit to my family doctor and a local oncologist one afternoon led me to Children's Hospital of Philadelphia by evening to begin my 3 year journey fighting Acute Lymphocytic Leukemia.

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  2. 2
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    I received my first chemotherapy during my intial 2-week stay at Children's Hospital of Philadelphia, and those would carry forward for 3 years. I seem to remember 3 treatments per week for some time, followed by weekly out-patient visits, eventually to occur as rarely as monthly and finally quarterly. I was 12 years old at the onset. The people at Children's Hospital were wonderful. I still remember most by name. Chemotherapy was a bit difficult, mostly due to the side effects, which I hope have lessened drastically over these past 30 years. There was impact to my daily life. Sports were largely put aside. I wasn't able to return to school initially. Instead teachers from my school came to my home to keep me moving forward. The teachers were so caring that they would volunteer extra time to take me to a ballgame or other event now and again. I returned to school within a matter of months, which brought on new challenges from some children and great support from others.

    Easy to Do: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
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  3. 3
    over 4 years ago
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    External radiation

    Radiation

    I received radiation for a short period, probably in my second year of treatments, but I can't say for sure. The radiation treatments were completly painless. Side effects include nausea for the day and possibly additional hair loss. It can be emotionally difficult for a child to lose his or her hair, but looking back I can say try your best not to even worry about it. It's gone for a short time and it comes back!

    Painless Experience: Strongly Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
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  4. 4
    over 4 years ago
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    Nausea/Vomiting

    Side Effects

    My greatest side effect memory from chemotherapy is unfortunately nausea. But, there's good news here, too! Over time the side effects were less and less!

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  5. 5
    over 4 years ago
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    Hair loss (alopecia)

    Side Effects

    Hair loss can be a toughy for just about anyone, but I think maybe even more so for young boys and girls. It turns out that hair loss makes you special, beautiful, and it comes back!

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  6. 6
    over 4 years ago
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    Weight gain

    Side Effects

    I personally gained weight over my 3 years with chemotherapy. Maybe that doesn't happen with everyone. As I became more active, the weight went back down. Not to worry.

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  7. 7
    over 4 years ago
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    Remission

    Celebration

    I understand that remission comes at different times for everyone, but what a wonderful thing to hear!

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  8. 8
    over 4 years ago
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    Hair is back

    Celebration

    Before long, my hair was back! Worry subsided and my confidence went right through the ceiling. (Now I know there's nothing to fear about losing your hair from chemotherapy)

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  9. 9
    over 4 years ago
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    Finished treatment

    Celebration

    I finished my treatments after 3 years. I believe the year was 1984. The medicines and recovery plans may have changed, but I'm sure day-to-day living, hurdles, and successes are exactly the same! Reach out to me if you'd like to chat!

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