Peacemom's Journey with Sarcoma - Adult Soft Tissue Cancer

Survivor: Sarcoma - Adult Soft Tissue Cancer

Patient Info: Finished active treatment more than 5 years ago, Diagnosed: almost 21 years ago, Female, Age: 41

  1. 1
    • Peacemom
    • Experience with Sarcoma - Adult Soft ...
    about 5 years ago
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    Surgery

    Procedure or Surgery

    I went into surgery to remove a lump that I had on my back for over a year. The doctors continued to say it was nothing and not to worry about it, but one doctor finally said, "well, it has gotten bigger so lets go ahead and remove it. When it was taken out, they then said, "oh, it's not what we thought it was"

    Went as Expected: Strongly Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  2. 2
    • Peacemom
    • Experience with Sarcoma - Adult Soft ...
    about 5 years ago
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    Diagnosed

    Oh No

    I was in college studying for finals when my parents showed up. (I was in college in Chicago and I am from Ky.) I had been calling every day to hear the results from the surgery, so when I saw my parents standing there in my dorm doorway, I knew the news wasn't good!

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  3. 3
    • Peacemom
    • Experience with Sarcoma - Adult Soft ...
    about 5 years ago
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    Surgery

    Procedure or Surgery

    This was the second surgery to remove the tissue that was surrounding the tumor to make sure the margins were clear. They went through the same incision, just made it a little bigger.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  4. 4
    • Peacemom
    • Experience with Sarcoma - Adult Soft ...
    about 5 years ago
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    First visit with oncologist

    Oh No

    After hearing about my tumor having been cancer, we flew home to Ky the next day from my college in Chicago. The next day we had my first appointment with my oncologist. She said, "I don't know what you were planning on doing the next year, but we need to put all your plans on hold. You'll need to drop out of school to stay here in Ky. You are scheduled for your next surgery and will get a long term catheter to get treatments for a year."

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  5. 5
    • Peacemom
    • Experience with Sarcoma - Adult Soft ...
    about 5 years ago
    Peacemom's Avatar

    Long-term catheter

    Procedure or Surgery

    Got a Groshong catheter

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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