Mimoe's Journey with Non-Hodgkin Lymphoma (NHL)

Survivor: Non-Hodgkin Lymphoma (NHL)

Patient Info: Finished active treatment more than 5 years ago, Diagnosed: over 15 years ago, Female, Age: 68, Stage III

  1. 1
    • Mimoe
    • Experience with Non-Hodgkin Lymphoma (NHL)
    over 8 years ago
    Mimoe's Avatar


    Oh No

    I have always worked at hospitals, I use to admit patients into the hospital (ambulatory surgery), and I always was the type to down play it, I loved making them feel comfortable in my office, and when I was at work, waiting for the next patient to come in, I noticed a large swollen gland on the left side of my neck. So the very next day, I went to a head and neck specialist, and 3 days later had that removed, and I was told it was large B cell NHL. I had chop for chemo, and it really wasn't that bad. I was out of work for 6 months, and upon returning, I was lied to that my job would be there, and from working 4 days a week, they offered me 1 day, I was so devasted, cause I loved my job helping people. And 11 months later I relapsed, and was told I would need a stem cell transplant. So I did my research, and chose Sloan Kettering, due to the amount of transplants they had done. I was so nervous, but I rather had not known every step as to what was gonna happen, so before the actual transplant (30days) in hosp. the most painful thing I ever went thru was retreiving my own cells. Since I had excellent veins, they chose not to put a port in, so I had to for 5 days withstand being in a bed hooked up to a IV one my right arm, and one on the left, so this machine was taking the plasma & red blood, and I needed 5 million stems cells, for me the pain was unbearable. I begged the next day (second) to have a port put in, but my blood count was to low for them to do that procedure, so I had four more days of pain to collect over 5 million stem cells. My luck it took me longer, some patients took 3 days, but no me it took 5. I never realized that I had this strength, and positive attitude, and did my journey. It was not a day in the park, but having my spouse w/me for 30 days, and never leaving my side was such a big support. I am now 5 years and 3 mos. in remission. Life is so precious, and the only thing I regret is not being able to return to work, due to my compromised immune system. I miss all my co-workers, but they are always in my heart. God has blessed me, and I believe this journey of mine is over. And if anyone needs to talk, or know, I am all ears. So life is truly is gift, and always accept every day with a smile, and at the end of the day I thank God for that gift. Anyone who is struggling with cancer, attitude is part of the cure to me. I live everyday with greatfulness.