Wonderland's Journey with Endometrial (Uterine) Cancer

Survivor: Endometrial (Uterine) Cancer

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 8 years ago, Female, Age: 63, Stage III

  1. 1
    • Wonderland
    • Experience with Endometrial (Uterin...
    about 5 years ago
    Wonderland's Avatar

    Diagnosed

    Oh No

    Sheer, utter terror, unable to sleep, when I did sleep, waking up with a voice not just saying, but SHOUTING "You've got Cancer" and no chance of falling back asleep again. All day long "you've got cancer" voice shouting in at any moment when I wasn't concentrating on something else. Gor lorazepam prescription, it helped the first time I took it, then much less so, but helped me fall asleep, I tried not to take it more than a few times a week so that it didn't lose all effectiveness. Since I could barely breathe or walk 100 feet from the Pulmonary Embolisms that led to Cancer diagnosis, the panicky state never ended. But every day I vowed to walk further, by 1 year, and despite chemo, I was up to 8 miles a day.

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  2. 2
    • Wonderland
    • Experience with Endometrial (Uterin...
    about 5 years ago
    Wonderland's Avatar

    Surgery

    Procedure or Surgery

    The hysterectomy surgery was the easiest part. I was out within 20 hours after. No one told me a pain prescription was at the pharmacy for me, so I just took a tylenol about once a day when I felt discomfort. I think it helped to listen to the Belleruth Naparstek CDs given to me by my surgeon to prepare for the surgery as well.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  3. 3
    • Wonderland
    • Experience with Endometrial (Uterin...
    about 5 years ago
    Wonderland's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    The chemotherapy was easy, I had few side effects, what was not easy was the constant feeling I'd been poisoned, which added to the anxiety/depression that I did manage to fight off thanks to a lot of support from friends, friends of friends, relatives, and so on. I let everyone know I had cancer and many many people turned up to help that I hadn't known had cancer. I found them far more helpful than the local gynecological support group, which scared and depressed the XXX out of me. It's important to find people who have been through this, others have no idea how scared and depressed you are.

    Easy to Do: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  4. 4
    • Wonderland
    • Experience with Endometrial (Uterin...
    about 5 years ago
    Wonderland's Avatar

    Internal radiation

    Radiation

    I just had 2 bouts of brachytherapy that I figure gave me about an extra 2% chance of survival with 1/2% chance of bad complications, a worthwhile risk. The doctor told me it was an additional 14%, but I read the literature (I have access to all journals) and was horrified at how much harm radiation does, I am so glad I didn't get pelvic or more extensive radiation! Chemotherapy has been proven to be so much more effective in this type of cancer that I can't believe it's even allowed to give extensive radiation.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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