cheypeggy's Journey with Breast Cancer

Patient: Breast Cancer

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 8 years ago, Female, Age: 62, Stage IIB, HER2 Positive: No, ER Positive: Yes, PR Positive: Yes

  1. 1
    about 8 years ago
    cheypeggy's Avatar

    Problem with doctor

    Oh No

    Found large lump in breast - biopsy was horrendous and very painful. When the doctor was getting the needle biopsy, I felt like I had been stabbed. Blood spurted out spraying my face, the wall and the nurse. The Dr said "ooops. Sorry. Hope that didn't hurt too bad. I'm going to have to try again." Biopsy came back positive. Pet scan that day showed 2 more masses previously undiscovered. I refused to allow additional biopsy to be done!

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  2. 2
    about 8 years ago
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    Mastectomy

    Procedure or Surgery

    I felt very uncomfortable with my surgeon, and should have followed my instincts. I was just scared and wanted the surgery over with. The morning of the surgery, he had me confused with another patient and thought he was performing a lumpectomy. The port he implanted was poorly positioned so it never worked properly, and was the main cause of a blood clot in my jugular vein that occurred after the 2nd chemo treatment.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    about 8 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Side effects pretty much as expected. Each treatment cycle seems to hit a little harder, take a little longer to recover

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  4. 4
    about 8 years ago
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    Hair loss (alopecia)

    Side Effects

    Harder to handle emotionally than the mastectomy!

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  5. 5
    about 8 years ago
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    Other

    Side Effects

    Blood Clot in the Jugular vein as a result of the port implant! Pretty scary.

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  6. 6
    over 4 years ago
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    Other breast removed prior to reconstruction, due to high risk of recurrence. This was done at the same time as tissue expanders were implant in preparation for breast implants.

    Procedure or Surgery

    I contracted a "hospital acquired" bacterial infection in my lungs. Was hospitalized for 10 days instead of 2. When the expansion was started, the Dr. realized that this process would not work for the left breast due to severe scarring of the chest wall from the radiation. O

    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  7. 7
    over 4 years ago
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    Removal of tissue expander on left side, and removal of infected tissue from a "hospital acquired anaerobic infection".

    Procedure or Surgery

    After 10 day hospial stay, this infection required another port being implanted for subsequent IV antibiotic treatment.

    Went as Expected: Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  8. 8
    over 4 years ago
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    Antibiotics

    Drug or Chemo Therapy

    I had to return to the infusion unit for IV antibiotics. Daily, for 60 days.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  9. 9
    over 4 years ago
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    Breast Reconstruction (Flap)

    Procedure or Surgery

    Had to have the TRAM flap on the left side because of the scar tissue on left side.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  10. 10
    over 4 years ago
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    Breast Reconstruction (Implant)

    Procedure or Surgery

    /implant placed on right side at the same time as the TRAM flap. 10 hour surgery

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  11. 11
    over 4 years ago
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    External radiation

    Radiation

    I experienced severe burns on left chest wall. After each of the last 10 treatments, I had to visit the burn center for medication and bandaging. Extremely painful process that was totally unexpected. I thought radiation would be the easy part!

    Painless Experience: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  12. 12
    over 4 years ago
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    Radiation

    I received severe burns to my chest wall, due to "a decimal point was misread in the orders." I was given too much radiation apparently. It was never gully explained what happened. I had huge blisters under my arm and across my chest. Extremely painful. After healing, I had scar tissue around and between ribs (costalchondritis), the skin was very tight and had lost all elasticity. External scarring impacted reconstructive surgery options

    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  13. 13
    about 3 years ago
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    Oh No

    This person has yet to add any details about this experience.

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  14. 14
    about 3 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    As mentioned, the port was placed incorrectly, causing pressure against jugular vein resulting I a blood clot. The Doctor decided to do the removal in his office. He had a student do the procedure. She was obviously not expecting it, and when she asked for his guidance he told her "you're a smart girl. Figure it out! Not very reassuring. I had small pieces of wire that worked their way out through my skin for several months afterward. When it was time to remove the drain tube after mastectomy, he told me to take a deep breathe, then yanked on the tube. Very painful and the tube didn't budge. He pulled very hard the second time, and I felt tissue ripping. Blood sprayed everywhere when the tube came out, and there was a good sized piece of tissue attached to it. Dr's comment: " loops. I'm sorry. I guess I had a few sutures in there that I forgot about. Hope that didn't hurt too bad. Would you like some Tylenol? I think I'd better put in a few sutures to fix up that hole we just made."$

    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    2 Comments
  15. 15
    about 3 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    I received Adriamycin, taxol, cytoxin. Had 3 courses, then my oncologist left his practice (without notifying patients). Assigned to a new oncologist who accelerated my treatments. Instead of once every month, I had chemo treatment every other week for 8 additional weeks. Followed by neulasta injection.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  16. 16
    about 3 years ago
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    Adjuvant chemotherapy.

    Other Care

    I have been taking an oral chemotherapy drug since the completion of the iv infusions. I take Letrazol, and its recommended that I take it for the rest of my life. It is a hormone blocker which will hopefully prevent spreading or recurring tumors. Side affects are loss of bone density, thinning of hair, and in some cases (including mine) stomach problems (inflammation of intestines, ulcers, gallstones)

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