MWilson's Journey with Papillary Carcinoma, Thyroid Cancer

Survivor: Thyroid Cancer > Papillary Carcinoma

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: about 11 years ago, Female, Age: 45

  1. 1
    • MWilson
    • Experience with Papillary Carcinoma, T...
    about 5 years ago
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    Other

    Other Care

    It began with a goiter and nodules around my windpipe and esophagus, choking me.

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  2. 2
    • MWilson
    • Experience with Papillary Carcinoma, T...
    about 5 years ago
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    Diagnosed

    Oh No

    I began having difficulty swallowing during my third pregnancy, choking on popcorn, water, air it seemed. Saw an ENT, learned of the goiter and had half my thyroid, goiter, and 15 nodules removed. One of the nodules was positive for cancer. By then, I was pregnant with number four.

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  3. 3
    • MWilson
    • Experience with Papillary Carcinoma, T...
    about 5 years ago
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    Surgery

    Procedure or Surgery

    The surgery to remove the goiter, half my thyroid, and the nodules went smoothly. I was in and out quickly, with only Tyanol for minor discomfort in the hospital. That is when the biopsies began. I also found out I was barely pregnant with number four during that surgery. (I found out about three weeks later.)

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
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  4. 4
    • MWilson
    • Experience with Papillary Carcinoma, T...
    about 5 years ago
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    Internal radiation

    Radiation

    The greatest impact to my life during this was I had an infant whom I had to stop breast feeding. I was separated from my family for over five days.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  5. 5
    • MWilson
    • Experience with Papillary Carcinoma, T...
    about 5 years ago
    MWilson's Avatar

    Surgery

    Procedure or Surgery

    After the cancer was found, and I had given birth to number four, they took the other half of the thyroid. My baby was 5 1/2 weeks early, so I still had the insurance to cover the surgery.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  6. 6
    • MWilson
    • Experience with Papillary Carcinoma, T...
    about 5 years ago
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    Cancer is back/Recurred

    Oh No

    During my 1st year thyroid up-take, they found enough new growth to give me a similar dosing of radiation.

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  7. 7
    • MWilson
    • Experience with Papillary Carcinoma, T...
    about 5 years ago
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    Internal radiation

    Radiation

    The next round came on the heels of my fourth child's birth, so again, no breast-feeding. I was going through a slight depression at that time, so being separated from everyone again, even for a few days was very hard.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  8. 8
    • MWilson
    • Experience with Papillary Carcinoma, T...
    about 5 years ago
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    Health insurance issue

    Oh No

    I was told that they needed two years of free scans, back-to-back, then another one three years out, for a total of five years to consider me 'in remission'. Well, the first scan did not go so well. My insurance ran out before the second one. (The isotopes were in very short supply.) So, no second scan. I could not afford $2,000 for it, and this was in 2008. It is 2012, past the five year mark, and I still cannot afford to get a scan. (We just had our fifth and final child in 2011, but again, could not get into an endocrinologist or get the scan before insurance ran out.)

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  9. 9
    • MWilson
    • Experience with Papillary Carcinoma, T...
    about 5 years ago
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    Still waiting

    Decision Point

    I am having issues with swallowing again, choking on food and liquids occasionally, and just have a feeling of 'something's not right'. But, what can I do? Without insurance, or two pennies to rub together, what's a person to do? I am at a stand-still in my life. I have five daughters and a husband, parents, other family and friends, who all need me. I just want to be around to be there for them. What options do I have? I haven't found the answer to that question, yet.

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  10. 10
    • MWilson
    • Experience with Papillary Carcinoma, T...
    about 5 years ago
    MWilson's Avatar

    Other

    Celebration

    I'm still having birthdays, I'm still alive. I will fight. I will not surrender, to my dying breath. I will not be defeated.

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