Therose's Journey with Multiple Myeloma

Survivor: Multiple Myeloma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 9 years ago, Female, Age: 64

  1. 1
    • Therose
    • Experience with Multiple Myeloma
    about 5 years ago
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    Misdiagnosed

    Oh No

    I started getting extreme back pain in 2007. I went to the doctor repeatedly was given meds for pain did not stop. I was sent to physical therapy, referred to an Orthopedic doctor, finally Accupuncture. Now keep in mind a xray was taken and a fracture was found in L7 or L8(lower back). I also had bone density test told bones weak. It wasn't until I got to the point I was in so much pain I could not walk from parking lot to car. I was at work I worked at Scan in Long beach at the time. I told supervisor I was in so much pain must leave got chest pain taken by ambulance to emergency. I was taken to nearest hospital while there doctor determine I lost twenty pounds and two pints of blood. In addition to xray revealing fracture in back, and bone density weakness. I needed to have MRI that is when cancer cells was found in my back.

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  2. 2
    • Therose
    • Experience with Multiple Myeloma
    about 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    I receive 6- 8 series of velcade and steriods. Once a month bone strengthener. I got more nausea from Promendrinate. I got nauseated at times from velcade but not as much. During my treatment phase I was in a fog. I had not digest the fact that Lidell Espy has cancer and I am now seating here having chemotherapy. It felt like I was going through the motions just so surreal. Like watching these things happening to someone else.

    Easy to Do: Not Specified
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Not Specified
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  3. 3
    • Therose
    • Experience with Multiple Myeloma
    about 5 years ago
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    stem cell transplant ( atuto) used own stem cells

    Procedure or Surgery

    I was referred to a Bone Marrow transplant doctor. I love her bedside manner. She made me feel like we were friends taking this journey or procedure together. Later during same office visit I had a consultation with woman who would advise me to different type of procedures in terms of maintenance care following transplant and One involved having radiation I did not want so I declined. I had stem cell transplant done at City of Hope in Duarte, Ca. Maintenance as part of clinical study is 3 or 4 weeks following transplant to once a week have velcade for 6 months with steroids. After six months to take thalidamide as much mg as your body would tolerate I am currently take 50 mg. My transplant was April 6, 2009.

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  4. 4
    • Therose
    • Experience with Multiple Myeloma
    about 5 years ago
    Therose's Avatar

    velcade/steriods 6 mos/ maintenance Thalidamide

    Clinical Trial

    I was given velcade to lower my M protein count to lowest level prior to going for stem cell transplant. My body responded to velcade treatment count began to go down. This was monitored by Oncologist. My Oncologist work close with my Bone Marrow Transplant doctor to get me ready for transplant. I had Neupagen injections to generate stem cell to be collected. I was sick during the process but only needed one collection. I was happy. Admitted to hospital for Stem cell transplant at time was considered near complete success in term of removal of cancer cell but amount left unmeasurable. I had 6 mos of velcade once a week also steroid. At the end of six months I started taking thalidamide 50 mg I am still taking thalidamide now.

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  5. 5
    • Therose
    • Experience with Multiple Myeloma
    about 5 years ago
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    Birthday

    Celebration

    I had a nurse who walking me through stem cell transplant at the commplete of procedure she said Happy Birthday! Drew Balloons on the board. I remember that date as a second Birthday. My treatment at City of Hope was excellent as far as how you are treated, friendliness, compassion. Staff made it a positive experience for me.

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  6. 6
    • Therose
    • Experience with Multiple Myeloma
    over 4 years ago
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    Nerve damage (peripheral neuropathy)

    Side Effects

    I have been taking thalidamide for close to four years. I developed some neuropathy in extremities my finger tips felt numb. My feet toes felt like they belonged to someone else. Contacted my Dr and she immediately told me to discontinue it. So no longer taking thalidamide as of October, 2012.

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  7. 7
    • Therose
    • Experience with Multiple Myeloma
    over 3 years ago
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    Bone thinning (osteoporosis)

    Side Effects

    In the past couple of months I had what I thought was a possible recurrence scare. Let me be more specific. I have been experiences some pain on right hip and lower back. This is type pain I had when I was diagnosed. The scary part was my original oncologist told me all she could do is guarantee is five years. That would be now and having pain again. Turns out after Xrays, blood test, and Pet/Cat scan. I have arthristis/ortheporsis. What I found out about myself is as well even though I feel pretty strong about being cancerfree still. I always carry the thought in the back of my mind of possible recurrence. What I must do is continue living the best quality of life I can and cross that bridge when I come to it. The arthritis is side effect from MM. I am happy to be able to say as much as possible spend time enjoying life instead of living in fear. It no point in it anyway what will be will be.

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  8. 8
    • Therose
    • Experience with Multiple Myeloma
    about 5 years ago
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    Two cancer scares one pallyp found in colon and second discharge from breasts

    Other Care

    I am happy to report that my two cancer scares both turned out to be cancerfree. The palyp was surgically removed was cancerfree. This was June of 2011. I also had discharge from right breast which had MRI and surgically removed enlarged gland not cancerous. This was July of 2012. I celebrated April 6 three years of remission of Multiple Myeloma

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