Ian's Journey with Medullary Thyroid Carcinoma

Survivor: Thyroid Cancer > Medullary Thyroid Carcinoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 5 years ago, Male, Age: 48, Stage IV

  1. 1
    • Ian
    • Experience with Medullary Thyroid Carcinoma
    about 5 years ago
    Ian's Avatar

    Diagnosed

    Oh No

    Despite the doctors assuring me that the nodule in my Thyroid was more likely benign I new deep down it wasn't. It was less of a shock than I expected. Sure I have had the why me, tears etc since but all the cancer has really done is made me more determined to fight for life and enjoy it to its fullest extent.

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  2. 2
    • Ian
    • Experience with Medullary Thyroid Carcinoma
    about 5 years ago
    Ian's Avatar

    Surgery

    Procedure or Surgery

    Total thyroidectomy + 6 lymph nodes removed, 2 more spotted in mediastinum that can not be reached. Right side laryngeal nerve was paralysed. At first it felt like I could not breath and my voice made me sound like a 13 year old entering puberty. Now my left side is doing a pretty good job at maintaining my voice even at louder levels (initially ordering a coffee in Starbucks felt like a marathon effort). My breathing is improving also and I have less instances of shortness of breath.

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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  3. 3
    • Ian
    • Experience with Medullary Thyroid Carcinoma
    about 5 years ago
    Ian's Avatar

    Levothyroxine

    Drug or Chemo Therapy

    100mcg to replace the function of my thyroid

    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  4. 4
    • Ian
    • Experience with Medullary Thyroid Carcinoma
    about 5 years ago
    Ian's Avatar

    Levothyroxine

    Drug or Chemo Therapy

    Ooops dose not quite high enough, now on 150mcg. Fingers crossed this is closer.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  5. 5
    • Ian
    • Experience with Medullary Thyroid Carcinoma
    about 5 years ago
    Ian's Avatar

    Cancer is shrinking

    Celebration

    Calcitonin dropped form 987 to 672 without any other treatment post surgery.

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  6. 6
    • Ian
    • Experience with Medullary Thyroid Carcinoma
    about 5 years ago
    Ian's Avatar

    External radiation

    Radiation

    Fatigue, fatigue and more fatigue but hey if I feel like this I am sure the Cancer is having a worse time!

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
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  7. 7
    • Ian
    • Experience with Medullary Thyroid Carcinoma
    about 5 years ago
    Ian's Avatar

    Cancer has spread/Metastasized

    Oh No

    My calcitonin levels are up two tests in a row if it keeps going this way things are not looking so good. Two weeks of radiation therapy left out of six and I was hoping for some good news :-(

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  8. 8
    • Ian
    • Experience with Medullary Thyroid Carcinoma
    over 4 years ago
    Ian's Avatar

    Cancer is shrinking

    Celebration

    It has taken a while, but I have had two massive drops in Calcitonin levels and am now in the 400's!!!!! The Radiation treatment was tough, I was unable to eat or drink and lost 40lbs but I feel better than I have for years now. Lets hope it continues!

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  9. 9
    • Ian
    • Experience with Medullary Thyroid Carcinoma
    over 3 years ago
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    Cancer is shrinking

    Celebration

    My Calcitonin levels had been steadily rising over the last 3 checks but suddenly took a dive to the lowest levels since diagnosis. I converted to a mainly vegetarian diet (Still eating fish occasionally) and am at least attributing some of the good news to that.

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