tfg's Journey with Non-Hodgkin Lymphoma (NHL)

Patient: Non-Hodgkin Lymphoma (NHL)

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 10 years ago, Male, Age: 72

  1. 1
    • tfg
    • Experience with Non-Hodgkin Lymphoma (NHL)
    over 4 years ago
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    Misdiagnosed

    Oh No

    Following surgery to remove a tumor on my neck I was initially diagnosed with mantle cell Non-Hodgkins lymphoma, which is very fast growing. However, after further testing the diagnosis was changed to small cell NHL, which is a much slower growing type of cancer. A CT scan showed that I had a lymphoma in my colon, which was removed surgically along with a portion of my colon. I was advised to "watch and wait" to see if any additional tumors developed..

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  2. 2
    • tfg
    • Experience with Non-Hodgkin Lymphoma (NHL)
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    After about a year of "watchful waiting" I developed another tumor on my neck and some internal ones in m y lymph nodes. I was started on chemotherapy which included 3 different drugs, including Rituxan. Each session took most of a day, and I had them every 3 weeks for about 6 months. Eventually the tumors mostly disappeared and chemo was rnded. and I continued to "watch and wait".

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • tfg
    • Experience with Non-Hodgkin Lymphoma (NHL)
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    I had to spend most of a day in the chemo room for each treatment, but the wonderful nurses made it pleasant. I had few side effects except for hair loss.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  4. 4
    • tfg
    • Experience with Non-Hodgkin Lymphoma (NHL)
    over 4 years ago
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    Surgery

    Procedure or Surgery

    When first diagnosed with NHL I had surgery to remove a tumor on my neck which was biopsied to determine that I had NHL. I also had surgery to remove a lymphoma tumor in my colon.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  5. 5
    • tfg
    • Experience with Non-Hodgkin Lymphoma (NHL)
    over 4 years ago
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    Weight loss

    Side Effects

    I didn't have many side effects from my chemotherapy, but I had many following my allogeneic stem cell transplant, including pneumonia, blood clots, congestive heart failure, osteonecrosis of shoulder joint, cataracts in both eyes, dry mouth and dry eyes, weight and muscle loss, fatigue, shortness of breath, parkinson-like symptoms (difficulty swallowing, hand tremors, etc.). Fortunately I no longer have most of these symptoms except for dry mouth and eyes. I had cataract surgery in both eyes and shoulder replacement surgery.

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  6. 6
    • tfg
    • Experience with Non-Hodgkin Lymphoma (NHL)
    over 4 years ago
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    External radiation

    Radiation

    the only radiation I had was about 30 minutes of whole body radiation before my stem cell transplant

    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  7. 7
    • tfg
    • Experience with Non-Hodgkin Lymphoma (NHL)
    over 4 years ago
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    Clinical Trial

    This person has yet to add any details about this experience.

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  8. 8
    • tfg
    • Experience with Non-Hodgkin Lymphoma (NHL)
    over 4 years ago
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    Remission

    Celebration

    About a year after my 2008 stem cell transplant I was pronounced free of cancer and in remission, although I was still feeling pretty weak.

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  9. 9
    • tfg
    • Experience with Non-Hodgkin Lymphoma (NHL)
    over 4 years ago
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    Decision to have a stem cell transplant

    Decision Point

    After two years of intermittent chemotherapy my tumors started to return, and it was apparent that chemotherapy was not going to work much longer. My oncologist suggested that a stem cell transplant would be the most effective treatment for me. After talking to some former stem cell patients and several doctors and reviewing the literature I decided to go ahead with the procedure.

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