Syd_Pea's Journey with Esophagus (Esophageal) Cancer

Family/Friend: Esophagus (Esophageal) Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 5 years ago, Male, Age: 54, Stage IV

  1. 1
    • Syd_Pea
    • Experience with Esophagus (Esophageal)...
    over 4 years ago
    Syd_Pea's Avatar

    Cancer has spread/Metastasized

    Oh No

    Finding out when my Dad had stage four esophageal cancer, was one of the hardest things to accept. It was unbelievable, especially after the doctor's explained how severe it was, and how it has spread throughout his body, to his liver.

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  2. 2
    • Syd_Pea
    • Experience with Esophagus (Esophageal)...
    over 4 years ago
    Syd_Pea's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    When my Dad first started his rounds of Chemotherapy, it was really tough on him, mentally and physically. It also made me sad, to see him so sick, and weak. It made him very ill, he had a low white blood cell count, he had to have three blood transfusion. The Chemotherapy was causing him to loose weight, hair, appetite, and his spirit. He was so depressed as soon as he began treatment, and it hurt to see him like this. He has completed five rounds of Chemotherapy, which thankfully got rid of the two spots of cancer in his liver, and shrunk his tumor about 90%.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • Syd_Pea
    • Experience with Esophagus (Esophageal)...
    over 4 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    The port they placed in his chest is for Chemotherapy treatments. He also at one point had a stent placed in his esophagus but he ended up having it removed a few days after, because it had become dislodged. And he hated it!

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
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  4. 4
    • Syd_Pea
    • Experience with Esophagus (Esophageal)...
    over 4 years ago
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    Anemia (low red blood cell counts)

    Side Effects

    My dad has had a lot of side effects from the cancer, and the chemotherapy. It has changed him greatly, inside and out. He doesn't seem like himself anymore. Its really heartbreaking, and hard to deal with.

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  5. 5
    • Syd_Pea
    • Experience with Esophagus (Esophageal)...
    over 4 years ago
    Syd_Pea's Avatar

    The Doctor's are trying to decide whether to continue with Chemotherapy and possible radiation, or let him go on a three moth break.

    Decision Point

    Last Wednesday, my Dad's doctor informed him that the cancer has spread to his lymph nodes around his stomach. And his tumor is growing bigger again. She also informed him that based on statistics he only has roughly around a year to live, that his cancer is uncontrollable and most people don't make it past a year with this cancer. Well of course this was very devastating news for him and his family. I can't imagine what he is going through right now. He's so young, I don't believe the doctor's when they say he only has a year to live, there has to be some hope out there. He's made it this far, 7 months. His first doctor said he wouldn't make it to six months. I am only 18 years old and his only daughter, this is really really devastating news to hear. I can't even begin to explain how scarred I am to loose my Dad, my best friend. He asked me the other day, if I think he's going to die. And that was really hard to hear him ask me that question, I thought to myself and told him, "No Daddy, I don't think you are going to die anytime soon, you are so young and you have a lot of life in you still, and you have me, you can't leave me now I'm only 18." and he sat quietly and looked up at me and smiled. I still have hope, hope that he can live longer then what the doctor is expecting. Hope that maybe one day he will heal. Hope that maybe he can successfully beat this cancer one day. I've been trying to find a way to communicate with others who are going through a similar situation right now. It's hard to find people to talk to who actually understand what it's like to go through something like this.

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