Jay's Journey:

Survivor: Bladder Cancer

Patient Info: Finished active treatment more than 5 years ago, Diagnosed: over 13 years ago, Male, Age: 61, Stage 0

  1. 1
    • Jay
    • Experience with Bladder Cancer
    over 4 years ago
    Jay's Avatar

    Diagnosed

    Oh No

    I was diagnosed with squamous cell carcinoma of the bladder. I caught this early thank god. I was at work and went to go pee and it was bright red blood. My doctor said that we can nip this in the bud and probably will have no problems. Well this was so untrue. I wish I would have taken this more seriously. The doctor made me feel like this was no big deal! I felt almost embarrassed for having it??? I don't know why I felt like that. If I did over again I would have gone to Memorial Sloane Kettering right then and there instead of wasting my time with this urologist. Don't think your cancer is "no big deal" because it is!

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  2. 2
    • Jay
    • Experience with Bladder Cancer
    over 4 years ago
    Jay's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I did a procedure called BCG. It is a live bacteria that causes your body to attack this bacteria and in process it is supposed to kill the cancer cells. This BCG is put into your bladder through the urethra. OUCH! It does really hurt ! (for a man anyway, I don't know about women). You then hold it in for two hours and then expel. My doctor did not inform me of the fact that you should put bleach in the toilet afterwards. This is very important! I did not know this until I went to Duke University Cancer center.

    Easy to Do: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • Jay
    • Experience with Bladder Cancer
    over 4 years ago
    Jay's Avatar

    Finished treatment

    Celebration

    At one point I actually got rid of the cancer. I had taken some time off work and treated myself with herbal products. I went to a very knowledgeable Naturapath and got advice. Don't try this alone. I slacked off of this and it returned -big mistake! I then once again went totally organic. I got rid of any un- natural household products and ate, as much as I could, organic foods or at least all natural foods. It doubled my food cost but I will never go back to foods with chemicals again. You CAN do this if you try hard to find sales, coupons etc. If you think you absolutely can't afford this, at least use a vegetable rinse product that will reduce the chemicals on your vegetables. I think it is very important as I believe cancer can be caused or helped by using un-natural foods and household products. I have been through several near death experiences but survived and I believe it is because I take such good care of my body now.

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  4. 4
    • Jay
    • Experience with Bladder Cancer
    over 4 years ago
    Jay's Avatar

    Cancer is back/Recurred

    Oh No

    At this point I was told at Duke that I would have to have the big surgery. Prostate, bladder to be removed and have an Indiana pouch installed. (urinary continent diversion) I was devastated.

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  5. 5
    • Jay
    • Experience with Bladder Cancer
    over 4 years ago
    Jay's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I used the same Chemo drug that is used for women with breast cancer. I forgot what it was called.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  6. 6
    • Jay
    • Experience with Bladder Cancer
    over 4 years ago
    Jay's Avatar

    nausea, vomiting, low red blood count, anorexia, depression, anxiety and more

    Side Effects

    I had most of the side effects that you hear about and more. But I didn't lose my hair. I didn't realize that some people do not lose hair. No fun! I really tried to keep a positive attitude and told myself that it wouldn't last forever. This didn't always work! I decided that it was OK to have a pity party once in a while but I would only let it last a day and then would kick myself in the XXX and get going again. If I physically could. If I was too weak I would watch movies in bed or read books until I felt better. I want to add that I didn't want to keep a journal as I didn't want to dwell on cancert all the time. I had to do enough of that at the doctors office, hospital or at "chemo time".I tried to do things that were not cancer related. Positive good things. I was hard sometimes to keep myself busy so I started keeping a list of "to do" things. I had to also come up with cheap and free things as I was not working.

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