Gooseberry's Journey with Liposarcoma

Patient: Sarcoma - Adult Soft Tissue Cancer > Liposarcoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 5 years ago, Female, Age: 69

  1. 1
    over 4 years ago
    Gooseberry's Avatar

    Diagnosed

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  2. 2
    over 4 years ago
    Gooseberry's Avatar

    Surgery

    Procedure or Surgery

    I had three surgeries in fact. After the first surgery, it took 3 weeks to receive an inadequate pathology report. I then traveled to Johns Hopkins for a second opinion. The recommendation was a second surgery to try to achieve clear margins. Although the initial surgeon had acknowledged cancer cells in the margins, he did not offer the option or suggest another surgery. I changed surgeons and had a second surgery. This surgery showed another tiny tumor in one of the margins, so the surgeon told me another surgery on the same day was needed to remove MORE margins. Unfortunately, after the pathology report came back, there were more cells in the new margins. The new surgeon then referred me for radiation.

    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. 3
    over 4 years ago
    Gooseberry's Avatar

    External radiation

    Radiation

    Experience was not so bad as I had anticipated. However, I worked during radiation, and the interruptions to daily life were difficult, and the commitment was a struggle. In addition, the machine kept having problems/breaking. At least two days' treatments were cancelled and on other days I was rescheduled to a different time because the door was stuck, or there were warm up problems. On several occasions I had to speak to supervisor or the radiation oncologist about these hassles and inattention to their impact on patients' lives who are trying to maintain a semblance of normalcy.

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  4. 4
    over 4 years ago
    Gooseberry's Avatar

    Skin changes

    Side Effects

    Back of thigh appears to be badly sunburned; surgery site was inner thigh. Some discomfort/tightness. Am finding that emu oil helps at least as much or more than cream provided for radiation by hospital.

    0 Comments