bp440's Journey with Hodgkin Disease

Spouse/Partner: Hodgkin Disease

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Male, Age: 72, Stage III

  1. 1
    • bp440
    • Experience with Hodgkin Disease
    almost 5 years ago
    bp440's Avatar

    Diagnosed

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  2. 2
    • bp440
    • Experience with Hodgkin Disease
    almost 5 years ago
    bp440's Avatar

    Surgery

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  3. 3
    • bp440
    • Experience with Hodgkin Disease
    almost 5 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  4. 4
    • bp440
    • Experience with Hodgkin Disease
    about 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  5. 5
    • bp440
    • Experience with Hodgkin Disease
    almost 5 years ago
    bp440's Avatar

    Hospitalization

    Other Care

    Gram negative sepsis. Unable to determine source of infection. Port Ok so chemo resumed and on long-term antibiotics.

    0 Comments
  6. 6
    • bp440
    • Experience with Hodgkin Disease
    almost 5 years ago
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    Other Care

    This person has yet to add any details about this experience.

    1 Comment
  7. 7
    • bp440
    • Experience with Hodgkin Disease
    almost 5 years ago
    bp440's Avatar

    Other

    Celebration

    My husband saw his pulmonary physician today and the shortness of breath is due to the anemia. There is no evidence of lung damage from the Bleomycin! YEAH

    1 Comment
  8. 8
    • bp440
    • Experience with Hodgkin Disease
    almost 5 years ago
    bp440's Avatar

    Finished treatment

    Celebration

    My husband completed his chemotherapy yesterday YEAH. Now we wait for follow up testing and results. We are so grateful to be at this point in his journey.

    0 Comments
  9. 9
    • bp440
    • Experience with Hodgkin Disease
    over 4 years ago
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    PET/CT scan

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  10. 10
    • bp440
    • Experience with Hodgkin Disease
    about 5 years ago
    bp440's Avatar

    Blurred vision

    Side Effects

    My husband's vision has changed dramatically since his last eye check up one year ago (and change in lenses). He found out yesterday that he has cataracts in full bloom (possibly due to the steroids this past year). His opthamologist is concerned that he has acute myopic changes and has ordered a blood sugar evaluation. The oncologist feels it may resolve on its own in a few months, but ordered the blood work just in case. It too can be related to the steroids as it effects muscles in the eye as well. Lots of different theories on this one.

    0 Comments
  11. 11
    • bp440
    • Experience with Hodgkin Disease
    over 4 years ago
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    Heart problems/heart damage

    Side Effects

    My husband's ejection fraction dropped from 59 to 47 from the Adriamycin. He had quadruple bypass 4 years ago. His cardiologist prescribed a alpha/beta blocker called IC Carvedilol. Apparently they have seen good results with this drug to help improve the muscle function of the heart post chemotherapy. He'll have an ECHO in a few months to see if there is improvement.

    0 Comments
  12. 12
    • bp440
    • Experience with Hodgkin Disease
    over 4 years ago
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    Adriamycin decreased ejection fraction significantly

    Side Effects

    Started on a new alpha beta blocker that is to help with the side effects of Adriamycin on the heart muscle. It reduces the workload on the heart.

    0 Comments
  13. 13
    • bp440
    • Experience with Hodgkin Disease
    about 4 years ago
    bp440's Avatar

    Celebration

    His annual PET/CT was all clear so year one in remission!

    0 Comments
  14. 14
    • bp440
    • Experience with Hodgkin Disease
    about 4 years ago
    bp440's Avatar

    Oh No

    My husbands shortness of breath continued to get worse with the slightest bit of exertion. MUGA showed his ejection fraction much worse EF 33% in moderate heart failure range due to the Adriamycin! So good news is he's in remission, bad news his heart is pretty damaged. Now starts more medications and more naps.

    0 Comments
  15. 15
    • bp440
    • Experience with Hodgkin Disease
    almost 4 years ago
    bp440's Avatar

    Celebration

    My husband completed his chemotherapy one year ago. Last year he was too sick to celebrate Thanksgiving. This year we are grateful to share this holiday with family!

    1 Comment
  16. 16
    • bp440
    • Experience with Hodgkin Disease
    over 3 years ago
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    Celebration

    Annual CT scan cancer free (one year post chemotherapy). Heart failure caused by chemotherapy has been reversed with medications, ECHO near normal!!

    0 Comments
  17. 17
    • bp440
    • Experience with Hodgkin Disease
    over 3 years ago
    bp440's Avatar

    Remission

    Celebration

    My husbands' recent blood work and check up all good so still in remission! He continues with the 3 month follow up for the rest of this year. Fatigue and shortness of breath are still present, but he does what he can then rests. Life is good.

    3 Comments
  18. 18
    • bp440
    • Experience with Hodgkin Disease
    almost 3 years ago
    bp440's Avatar

    My husband's Hodgkins is officially cured. No more scans, just follow up blood work for 3 more years!

    Celebration

    Although he is cured of the cancer,the chemo did a lot of damage to his body. It has changed him forever. However, we are happy to be able to work through these challenges and enjoy our life for as long as we have it together.

    1 Comment
  19. 19
    • bp440
    • Experience with Hodgkin Disease
    over 4 years ago
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    Remission

    Celebration

    Great news today, my husband is in remission.

    0 Comments