Paige's Journey with Hodgkin Disease

Survivor: Hodgkin Disease

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 7 years ago, Female, Age: 27, Stage II

  1. 1
    • Paige
    • Experience with Hodgkin Disease
    about 5 years ago
    Paige's Avatar

    Diagnosed

    Oh No

    Back in November of 2010 I had a lymph node removal. My surgeon said he was sending me to a onocolgist just because it was routine, but that I had nothing to worry about. The day I went to the onocologist and she said Paige you have a type of cancer called Hodgkin's Lymphoma it was like a brick was being tossed at my head. My mother had just finished her treatments from breast cancer and I couldn't believe that this was happening to me!! Why would god do this to me and my family was the question I had asked over and over again! My husband's (he was my boyfriend at the time) brother was just killed in action in late October too so it was like a triple whammy for our family. I think that it broke my heart more for Jason than for myself. It was hard for me to tell him. I had told him that he didn't need to take off work because it was no big deal, but here I am sitting in an office with my mom and dad and they are saying by the way it is cancer. It took me quite a while to be able to even say I have cancer.

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  2. 2
    • Paige
    • Experience with Hodgkin Disease
    about 5 years ago
    Paige's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    I had my port placed a few weeks before Christmas. I did not think that it was going to be a big deal but man was I sore!! They placed it on my right upper chest and it was very uncomfortable. My recovery took a little longer than I had expected. It was also strange wearing a seatbelt sitting on the passenger's side of a vehicle. My onocologist gave me a 'Port Pillow' that helped with that. Even though I do not have my port now I still feel discomfort when I wear a seatbelt sitting in the passenger seat.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • Paige
    • Experience with Hodgkin Disease
    about 5 years ago
    Paige's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I began chemotherapy on January 2, 2011. My first chemotherapy was different than all the rest. It took nearly all day for my nurses to access my port. They finally had to send me to radiology. After having it accessed I started my premeds. I received benadryl so I slept through my entire chemo session. I woke up with ten minutes left and that happened pretty much every time. So getting my chemo was fairly easy. My first chemotherapy I never had nausea which was nice. However, my bowels were not moving so I on my next chemo and the rest after they changed my meds. With the new meds I was very sick. I was unable to eat before receiving chemo because everytime I went I would wake up with ten minutes left and vomit every time. That was very unpleasant. I almost always did chemo with a woman that ate through her entire treatment and we would make jokes that she was eating what I couldn't. She helped to lighten the mood a lot. She also gained weight during her chemo. She was very special !!! Almost every chemo session I had my nurses had difficulty accessing my port. It always made for a long day. I didnt lose my hair until after my second chemotherapy treatment. After the first treatment there was almost no physical changes. It was nce because I turned 21 so I was able to have a small get together with my family without looking any different. After my second treatment I woke up the next day and my hair was starting to fall out. At first it was really hard for me but then I just said o well and I got up one morning and cut it off myself with scissors in my bathroom. I was learning to embrace being bald. My family also found me cute hats to keep my head warm. Once the weather got nice I embraced being bald and just sunscreened my head.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • Paige
    • Experience with Hodgkin Disease
    about 5 years ago
    Paige's Avatar

    Engagement

    Celebration

    On February 11, 2011 my now husband proposed to me !!! I was scheduled to have chemotherapy on February 14 (Valentines Day). He had originally planned to propose on the 13th but decided to do it early. I hadn't been feeling well and was still in my pj's. He came into my room at my parents and rubbed on my back and began telling me how proud he was of me and how strong I was and then BAM he dropped down on one knee and asked me to marry him!! I obviously said yes!! I didn't want to take pictures but I allowed him to take one picture of us on his phone and today I treasure that picture and that moment more than any other moment. Looking back I wish we would have taken more pictures.

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