skay3's Journey with High-Grade Astrocytoma (also called G...

Family/Friend: Brain and Spinal Cord Tumors in Adults > Glioma > Astrocytoma > High-Grade Astrocytoma (also called Glioblastoma)

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 5 years ago, Male, Age: 53

  1. 1
    • skay3
    • Experience with High-Grade Astrocytoma (...
    over 4 years ago
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    Diagnosed

    Oh No

    Diagnosed with a stage four glioblastoma.

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  2. 2
    • skay3
    • Experience with High-Grade Astrocytoma (...
    over 4 years ago
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    Surgery

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • skay3
    • Experience with High-Grade Astrocytoma (...
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Radiation and temodar for 6 weeks. Radiation 5 days a week temodar 7 days a week orally.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  4. 4
    • skay3
    • Experience with High-Grade Astrocytoma (...
    over 4 years ago
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    Weather to do clinical trial or stronger Chemo

    Decision Point

    The growth shown on the MRI was significant, so much so that they suggest we stop what we are doing and take my dad to the doctor 2 times a month to get chemo sent straight to his brain via a intravenous cathater. If we choose to do that my dad will not have the option of being in the clinical study that we spent so much time and money preparing for.

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  5. 5
    • skay3
    • Experience with High-Grade Astrocytoma (...
    over 4 years ago
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    Other

    Oh No

    Being my fathers tumor has grown so rapidly it has now moved to the left side of his brain which is unoperable, not only that but his short term memory is completly gone. He cant remember anything he always is asking where my sister is ( she is at college ) or if were going kayaking. He always thinks he needs to leave or do things that dont exist and its been very hard on all of us.

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