blackcamaros' Journey:

Patient: Brain and Spinal Cord Tumors in Adults > Glioma > Astrocytoma > High-Grade Astrocytoma (also called Glioblastoma)

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Male, Age: 53

  1. 1
    over 4 years ago
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    Urgent Care Visit

    Other Care

    I was having headaches that wouldn't go away with tylenol. I would wear ear plugs in the morning when my wife used her hair dryer. The headaches made my eyes hurt, so I assumed this was what my wife and daughter referred to as a migraine headache. After almost 6 weeks of this, I finally left work to go to urgent care, because I was sure I had a sinus infection. the Dr. could not find any reason for my headaches, and was concerned enough to order a CT scan. The CT showed a white mass on the right side of my brain, so he ordered a MRI. This showed massive swelling and a very large brain shift. He couldn't believe that I hadn't had any seizures. He also couldn't believe I had been driving 100mi round trip to and from work. He immediately scheduled me to see a neuro seurgon the next day.

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  2. 2
    over 4 years ago
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    Appt. with Neurosurgeon

    Other Care

    The day after my urgent care visit, I was seen immediately by a Neurosurgeon, and I gave him the CD that had copies of the CT scan and the MRi. He told me he was admitting me that afternoon, and would do surgery in the morning to remove the tumor.

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  3. 3
    over 4 years ago
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    Surgery

    Procedure or Surgery

    December 20, 2011, I was in surgery early in the morning, and underwent craniotomy and gross resection of tumor growth. I was in surgery for over 5 hours, but it was a successful removal of the tumor. Pathology was ordered to determine type of tumor removed.

    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    over 4 years ago
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    Diagnosed

    Oh No

    Pathology report indicates Astrocytoma Grade 4, malignant brain cancer.

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  5. 5
    over 4 years ago
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    radiation oncologist

    Other Care

    January 19, 2012: I was seen by radiation oncologist and referred for updated MRI for planning purposes.

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  6. 6
    over 4 years ago
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    Cancer is back/Recurred

    Oh No

    February 2, 2012 An MRI prior to starting radiation shows more tumor growth in the resection area

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  7. 7
    over 4 years ago
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    Surgery

    Procedure or Surgery

    February 9, 2012 I undergoe craniotomy #2, and successful resection of new tumor growth.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  8. 8
    over 4 years ago
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    Swelling and Fever

    Oh No

    February 17, 2012: I am admitted to hospital neuro ward through ER with swelling and fever. February 22, 2012: After testing and monitoring, no lab indication of infection. I am sent home with oral antibiotics.

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  9. 9
    over 4 years ago
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    Surgery

    Procedure or Surgery

    February 23, 2012: I am admitted to hospital with lab results positive for staph aureus, fever increases and neuro signs indicate swelling. After CT scan, I am moved to ICU and scheduled for early surgery. February 24, 2012: I successfully undergo surgery to clean infected area and remove bone flap as source of infection. Before I leave the hospital, a PIC line is put in, and I am setup with a portable pump and anitbiotics for 6 weeks.

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  10. 10
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    I was taking Temodar in conjunction with the rediation. The radiation was 5 days a week for 6 weeks. I had horrible anxiety regarding the radiation mask, and had to have the MRI's while sedated. I started seeing a phychiatrist, and managed to work through the issues, and have been doing the MRI's without sedation. March 14th I started Oral Chemo and Radiation. I still had the PIC line and pump when I started radiaion. The pump was in a case with a shoulder strap. I would take the pump off my shoulder and place it between my knees while laying on the table, getting my radiation.

    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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  11. 11
    over 4 years ago
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    External radiation

    Radiation

    I was taking Temodar in conjunction with the rediation. The radiation was 5 days a week for 6 weeks. I had horrible anxiety regarding the radiation mask, and had to have the MRI's while sedated. I started seeing a phychiatrist, and managed to work through the issues, and have been doing the MRI's without sedation. I also beat the radiation mask. The radiation room had a CD player/FM radio, and I was allowed to choose whatever I wanted to listen too. Initially, I would have the technicians set it to an easy listening, lite rock station. Eventually, I started bringing in CD's of Drum Corps shows, which is some of the most intense music to listen too . . . especially, when every show on the CD's, I was part of. It really helped my not think about the mask.

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Disagree
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  12. 12
    over 4 years ago
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    MRI

    Procedure or Surgery

    August 16" I had a followup MRI when I was done with the chemo and radiation, and the tumor had returned, causing swelling on my brain. The Oncologost believes I have a Temodar resistant form of astrocytoma. I was given an emergency infusion of avastin, and sent home with rescriptions for steriods. The Oncologist called everyday for the next week to see how I was doing, and would change or add prescriptions as needed I am scheduled to take the vastin every three weeks. I feel great after taking it, so really look forward to it.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  13. 13
    over 4 years ago
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    Surgery

    Procedure or Surgery

    JUne 28th: I had surgery to replace the bone flap. I was in surgery early in the morning, and released to go home JUne 29th.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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