budgiegirl52's Journey with Diffuse Large B-Cell Lymphoma

Survivor: Non-Hodgkin Lymphoma (NHL) > B-Cell Lymphoma > Diffuse Large B-Cell Lymphoma

Patient Info: Finished active treatment more than 5 years ago, Diagnosed: over 12 years ago, Female, Age: 57

  1. 1
    almost 5 years ago
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    Surgery

    Procedure or Surgery

    I went into surgery thinking I had appendicitis and woke up four days later with a tumor removal, fem/fem bypass and over 50 staples on m abdomen and down into my legs.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  2. 2
    almost 5 years ago
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    Diagnosed

    Oh No

    My husband told me I had lympohoma, one of the worst things he has ever had to do.

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  3. 3
    almost 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Had my first chemo 3 weeks later. As a result of my previous surgery, my leg had swollen to 3 times it's normal size. I had no venous return and all the lymph fluid collected in my leg. Then, after my first chemo, approx. a week later, my leg turned gangrenous and shrunk down and turned black. I had my right lower leg amputated 15 days after my first chemo.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    almost 5 years ago
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    Body part/function

    Loss

    Right lower leg amputation.

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  5. 5
    almost 5 years ago
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    Infection

    Side Effects

    Developed MRSA in my stump. Ended up with a fever of103 and had to be hospitalized, with IV antibiotics at the hospital and at home for several weeks. Doctor gave me the wrong (weaker) dose of antibiotics and then devloped muscle tissue die off. After having fevers every night for a few weeks, had to have surgewry to remove dead tissue in my stump. The surgeon left the incision open and I had to use a Wound Vac machine in the incision. You have to pack the incision with a sponge and then place a plastic bandage with a suction tube attached to it. The machine then vacuums out all of the drainage from the wound. I had that for a month, but kept getting the fevers; So, had another surgery to remove my dead tissue and he closed up the incision. I was on antibiotics for a total of 10 months. I had to have two more surgeries to close up the incision, but it finally healed up.

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  6. 6
    almost 5 years ago
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    Finished treatment

    Celebration

    About halfway thru my treatment, the PET scan showed my tumors were shrinking. Thank goodness, because I could not have radiation, The tumors were too close to my aorta. My treatment had to be modified, because of my infection and surgeries, but I finally passed my PET scan with flying colors and was shown to be in remission in April of 2005!!!

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  7. 7
    almost 5 years ago
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    Home care

    Other Care

    My home health nurses took very good care of me. My sweet husband and two boys (teenagers at the time) were there for me, as well, Thank you all!!!

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