Pattiann's Journey with High-Grade Astrocytoma (also called G...

Caregiver: Brain and Spinal Cord Tumors in Adults > Glioma > Astrocytoma > High-Grade Astrocytoma (also called Glioblastoma)

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: almost 7 years ago, Male, Age: 54

  1. 1
    • Pattiann
    • Experience with High-Grade Astrocytom...
    almost 6 years ago
    Pattiann's Avatar

    Diagnosed

    Oh No

    Dec 1st,2010 ny brother was diagnosed with a GBM grade 4.primary source the brain. had surgery Jan 18,th 2011. removed as much of the tumor as possible 4 weeks later started Chemo Temador and radiation.After several weeks of this treatment Mri showed regrowth of the tumor. New treatment plan "Avastin" (tumor shrinking agent) IV method once every 2 weeks for 4 weeks, follow up with blood work after each treatment. Mri after 1st cycle MRI showed signifignant shrinkage of tumor. Started 2nd cycle of Avastin again after 4 weeks Mri showed brain is stable. Then all of a sudden my brother was experiencing pain in the lower lumbar and pain in right hip& weakness in right leg along with numbness. a week after Oct 5th he fell and couldn't get up. new MRI of spind showed the cancer spread to his spine ( Drop Metastasis) very rare for this to happen only 1% of GBM patients have this happen prognisis is very poor only a few months. Is there anyone out there that knows someone that this has hapened to! as of now the new radiation treatment isn't working my brother's overall condition is very serious.

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  2. 2
    • Pattiann
    • Experience with High-Grade Astrocytom...
    almost 6 years ago
    Pattiann's Avatar

    Surgery

    Procedure or Surgery

    surgery was 8 hours. The tumor was bigger then expected about the size of a lime! my brother was discharged in less then 2 days! And that wasn't good I stayed with my brother for a week then a friend of his moved in but I had to get him a nurse to come to the house during the day to help him out after I left to go home to CT for a little while.

    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Agree
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  3. 3
    • Pattiann
    • Experience with High-Grade Astrocytom...
    almost 6 years ago
    Pattiann's Avatar

    anti seizure medication

    Drug or Chemo Therapy

    the first anti-Seizure medication my brother was on, was Kepra. He had a severe allergic reaction to that & was back in the hospital for severe panic attacks & having hallucinations.They put him on Dilantin another bad experience. Then he was put on Depokote ER that was a good choice for him. It actually made him feel better. still on it.

    Easy to Do: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Agree
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