candy's Journey with Rare Cancers

Patient: Rare Cancers

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 7 years ago, Female, Age: 35

  1. 1
    • candy
    • Experience with Rare Cancers
    about 5 years ago
    candy's Avatar

    Diagnosed

    Oh No

    I went into my doctors office thinking I was pregnant than, was told the baby was in my fallopian tubes and surgery was needed immediately. I had a laperoscopy with a dnc the next morning and when I woke up from surgery my doctor said she didn't find a baby. Oh no! My HCG levels, which are hormone levels that determine whether or not you are pregnant and just how far along you are, were extremely high which meant there was suppose to be a pregnancy however, I had a molar pregnancy. That's when the fetus is not properly formed and becomes a tumor. If not treated properly it becomes cancerous. Mine I believe was left untreated for 2 yrs and after an mri it showed the tumor had made it's way from my uterus up to my left lung.

    0 Comments
  2. 2
    • candy
    • Experience with Rare Cancers
    about 5 years ago
    candy's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    The first Chemothery regime that I was on was called MAC. I think after having your body injected with these poisonous drugs for the first time you go into a complete shock. My first treatment was absolutely horrible. The anxiety and nausea was definitely present. I was afraid, anxious and didn't know how to feel. I was very fortunate to have such great supporters, my family. However, I got through it and new what to expect for my next treatment. I had my Xanax ready and anti nausea medication and I have to say the second time around was a little easier on me. Every treatment after that became easier and easier except for the nausea. But, four regimines later I found a wonderful cocktail to help my nausea. I found that Kytril, along with a combination of Aterol, benadryl and Haldol (ABH) works wonders.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  3. 3
    • candy
    • Experience with Rare Cancers
    about 5 years ago
    candy's Avatar

    2nd opinion out of town.

    Decision Point

    After trying two different chemo regimines that weren't successful, my oncologist said there were no other choices left for me. He recommend I get a second opinion but I was terrified. I had all my faith and confidence in this one doctor that I felt if he couldn't treat me nobody could. My husband wasn't willing to give up though. He researched doctors with experience in my type of cancer (Gestational Trophoblastic Disease) and found one oncologist in particular in Houston at MD Anderson. He scheduled the appointment for me and within a week we were there. Dr. Karen Lu immediately knew what to do. She suggest getting aggressive by removing the tumors in my lung followed by more chemotherapy.

    0 Comments
  4. 4
    • candy
    • Experience with Rare Cancers
    about 5 years ago
    candy's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Since I have been a patient at MD Anderson I have been on two different chemo regimines post surgery. My HCG levels will drop to negative when I'm on therapy but once I'm off they begin to rise again. My last chemo treatment was July 21st 2012 and unfortunately 4 weeks later my levels began to rise again. I've had ct scans since than which are negative but my number continues to be elevated. Right now as I wait for Dr. Lu to come up with a new plan, I'm enjoying my time off chemo. I have had chemothery for 2 years straight so, I'm in no hurry to get back on it. I'm enjoying my two beautiful daughters, Katalina 10, and Emily 5 and my wonderful husband. Until she informs me of our new plan, I will continue living life to the fullest.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments