cristinainms' Journey with Vaginal Cancer

Patient: Vaginal Cancer

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: about 7 years ago, Female, Age: 44

  1. 1
    over 5 years ago
    cristinainms' Avatar

    routine pap

    Procedure or Surgery

    I first must start by saying I had a complete hyst. in 2006 due to endometriosis stage III, with uterine cancer which was contained in the uterus, and my ovaries were 3-5 times the norm size, and scaring on fallopian tubes. After a number of blood transfusions and other numerous problems, I was told in 2005 I needed a hysterectomy. I thank God my dr was so caring and took extra care of me when I was still in Arizona. I have continued to see that dr however now, after moving to Mississippi this summer, I no longer have the care she was providing me. I am due for another re-pap in December. I was diagnosed with HR HPV 16 LG SIL back in May of 2010. I have remained that status. I guess I am thankful it is not worse since I am not longer under her care and being on SS Medicare with no other insurance yet in MS, I may have a slight bit more time till my insurance here Medicaid kicks in. I know that the diagnosis my dr called VAIN 1 was a shock to me. I also am aware that there are usually few if any symptoms. However, I cant help but wonder why I am having so many issues. They include things such as constant lower abdomen pinch type pains, burning pain also in the same area where my ovaries would be on the left side, bloating only in the lower abdomen, nausea, fatigue, sweating from my abdomen down through my upper thigh area that actually hurts with heat...I dont know how else to describe this; pain in my vagina like low grade contractions, acidic urine and occasionally raw skin around my vagina and anal areas as well as within my vagina. I cry most times this happens. Episodes last for weeks and wake me up at night. I find that my pain tolerance is very low. I am so tired of hearing myself sigh with discomfort and exhaustion at times. I feel like I dont have anyone who understands this and if I continue to show I dont feel good, my 16 yr old son and 12 yr old daughter are always worried about what they can do or if they should take me to hospital. The sad part is I dont even know if this is just part of the course or if I really should go. Like I said I dont yet have a doctor here in Waveland MS and am waiting on Medicaid before I seek a reputable dr which also seems to be hard to even find a doctor in my area that will take my insurance if i did need to go. I am scared and cant hide that lately. I notice when I am sick like now with the bronchitis, I seem to have more symptoms down there as well. I cant seem to get better no matter what I try to treat the bronchitis. And the symptoms I have in the vaginal area really are starting to be more disabling right down to cant wear my jeans or other daily clothing like I am used to. I have an appetite but I am not eating like i would normally. I also have head aches and just feel like I would rather stay in bed. I wish someone could tell me VAIN 1 has symptoms and I am not crazy. Does anyone know what to do next? I feel alone and lost. Hope my pain goes away.... By the way I am not on any medication. I have been in MS since Sept 2nd. I am bipolar also and to top it off, I am out of my Citalopram and Xanax. And I think those were wrong meds courtesy of a different AZ dr!!! So my depression is definitely evident also. I dont have pain meds or other antibiotics for anything either. Just thought that may be of help if anyone has any words that can help me with this situation I would so appreciate the advice. Thank you

    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    1 Comment
  2. 2
    over 5 years ago
    cristinainms' Avatar

    Diagnosed

    Oh No

    may 2010 diagnosed with HR HPV 16 LG SIL

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  3. 3
    over 5 years ago
    cristinainms' Avatar

    Other

    Side Effects

    I guess I already listed the side effects in part one. I cant say that they occured after the exam because they have been the same side effects for a year only they have become more present and evident daily than one year ago.

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  4. 4
    over 5 years ago
    cristinainms' Avatar

    Health insurance issue

    Oh No

    fast foward to MS 2011, and again I already shared in part one that my relocation has caused the insurance lapse issue and I can only pray that gets solved quickly so I can get a dr that can treat and care for me under these circumstances in my area. Gynecologic Oncologists are hard to find here.

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