Rubyshoes' Journey:

Survivor: Brain and Spinal Cord Tumors in Adults

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 6 years ago, Female, Age: 33

  1. 1
    • Rubyshoes
    • Experience with Brain and Spinal Cor...
    over 4 years ago
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    External radiation

    Radiation

    At Northwestern Medical School in Chicago, I had 33 treatments (6 1/2 weeks) of targeted radiation to the brain tumor. For the first three weeks I did not notice any side effects, other than hair starting to fall out where the radiation was being administered. After three weeks, I felt some fatigue and my vision worsened. I was able to work the entire time but decreased to part time because my treatments were during business hours.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  2. 2
    • Rubyshoes
    • Experience with Brain and Spinal Cor...
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    For the brain tumor, I took Temodar. This had minimal side effects with the most common being nausea. I took Zofran to help with the nausea and a side effect of that was constipation. When Zofran was no longer effective I started wearing a Sancuso patch, which worked well. For the lymphoma, I had CHOP+E treatment. This had more side effects including loss of hair, colder body temperature and fatigue. I also had shingles while being treated so overall, this treatment was more unpleasant.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • Rubyshoes
    • Experience with Brain and Spinal Cor...
    over 4 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  4. 4
    • Rubyshoes
    • Experience with Brain and Spinal Cor...
    over 4 years ago
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    Finished treatment

    Celebration

    The last day of radiation was 10-14-12!! The oral chemotherapy treatment was stopped 11-2011 because the brain tumor was stable and I needed to start chemotherapy for the newly diagnosed lymphoma. Last day of chemotherapy was 3-30-12!!!

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  5. 5
    • Rubyshoes
    • Experience with Brain and Spinal Cor...
    over 4 years ago
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    Hair is back

    Celebration

    The "peach fuzz" as we called it, started growing back 3 weeks after my last day of chemotherapy. Substantial hair growth was noticeable after 2 months!

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