dvdbriansr's Journey with Head & Neck/Throat Cancer

Patient: Head & Neck/Throat Cancer

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: over 4 years ago, Male, Age: 59

  1. 1
    • dvdbriansr
    • Experience with Head & Neck/Throat ...
    over 4 years ago
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    Diagnosed

    Oh No

    Well Differentiated Squamous cell carcinoma of/in the pharyngeal wall (FS1), left tonsil (FS2), left tonsil, . . . in my language, in my throat. Straight off the biopsy report. I am told that this is good. How could anything about this be "good"

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  2. 2
    • dvdbriansr
    • Experience with Head & Neck/Throat ...
    over 4 years ago
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    Will "begin" treatment

    Decision Point

    After finally getting most of the "facts," and my chemo Dr insisting that she takes over all of my pain management with the promise that she will attempt to relieve as much pre and post cancer pain as she possibly can, for the next 5 years and will continue to do so after that or refer me to someone in which she feels confident enough in to do the same. God it'd be great to get my pre-pneumonia/2010 life back!!! Who knows, maybe, just maybe, after my cancer team tries to kill me and my cancer, there may finally be "LIFE" once again!!! God bless Dr. Hopkins (oncologist/chemo therapist).

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  3. 3
    • dvdbriansr
    • Experience with Head & Neck/Throat ...
    over 4 years ago
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    Radiation Mask

    Procedure or Surgery

    I am claustrophobic, enough said, or do I really need to explain what went through my mind when they stretched that warm piece of material over my head/face and let it "shrink" to my face as it cooled? ARRRGH!!!

    Went as Expected: Neutral/NA
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  4. 4
    • dvdbriansr
    • Experience with Head & Neck/Throat ...
    over 4 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    The mediport was a breeze, it was the reaction my innerds had to the feeding tube that landed me a 3 day hospital stay with such pains in and below my diaphram that I couldn't breathe, The pains in my stomach region were honestly of a severe doubling over cripling type of pain of the likes that I've NEVER in my life ever experienced or hope I ever do again. I didn't think pain could possibly get any worse then what I've experienced through all my years of spine issues, INCLUDING any of the surgeries. I had a G-Tube back in 2010 (same tube as this one) and it had absolutly no adverse effects. This one @@$% near killed me. Seems like these last 2 recovery processes from what I would say were simple surgeries was so much more difficult to overcome. Is it just that I'm getting to old for this stuff, or am I correct in believeing that I've not yet fully recovered from my last bout with pneumonia in 2010? And if I've not recovered how am I going to get through Chemo Therapy and Radiation therapy in one piece, much less alive?

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  5. 5
    • dvdbriansr
    • Experience with Head & Neck/Throat ...
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    At the time the Chemo Treatment was being done, the six hours spent hooked up to an IV pole and held prisoner to a recliner was just plain boring me to death, during the times when the pre-chemo drugs took hold I did get some much needed sleep though. All in all, I'd have to say that the Chemo went pretty good, yes, I know, this was just treatment #1. Unfortunately, the treatment began at 8:00 am and didn't end until 3:00pm. My Radiation treatment was cancelled and put on hold until Monday. The really funky thing about it was that other then being in a little extra pain from sitting in their chair for so long was that at 1:39 am I woke from the best sleep I've had in probably years I was just so sick, I mean Pooh Bears' tummy couldn't have ever been more rumbly tumbly than mine. I took the Compazine and Ativan they prescribed for nausea and within an hour or so I almost felt humanoid again. Too bad I couldn't get back to sleep. It's been a rather strange trip thus far, however I could spend the rest of my life not knowing "the rest of the story." Oh yeah, my G-Tube has finally decided to make nice with the rest of me. Either that OR it can't compete with the additional pain meds, which I must admit, my head, neck, back and legs really appreciate them even more.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  6. 6
    • dvdbriansr
    • Experience with Head & Neck/Throat ...
    over 4 years ago
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    External radiation

    Radiation

    From the information that I had previously acquired through my readings I was under the impression that the radiation burn was cumulative/progressive, not something that was supposed to be so noticeable with your first exposure. Man, did I get this one wrong! Got news for ya al', . . . I DEFINITELY "felt the burn" throughout my mouth, throat, tongue, gums. etc, . . . with my very first exposure. Not certain which was really worse in the beginning, the taste in my mouth or the sensation of watered down battery acid in my mouth, come to think of it, "it was a lot like" having watered down battery acid in your mouth. Am truly surprised that I'm not "glow-in-the-dark" now. Maybe that's one of those "cumulative" side effects, ya think? No offense intended to anyone, but, I 'think' I'd rather have 47 weeks of Chemo Therapy than 47 more exposures to radiation. However since I've only had one Chemo session and it went surprisingly well, I reserve the right to change my mind as I go. I am allowed to do that aren't I?

    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Neutral/NA
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